The John Locke Approach to Infertility

Yesterday I was in a very glowy, lovey-dovey mood. It was our leather anniversary - how could I not be? Wait, that sounded a bit too kinky, let me clarify: it was our third wedding anniversary. It's amazing how quickly the time flies. I think we're officially on the tail end of being considered newlyweds, but don't forget - we've been dating since we were 15 (with a year off somewhere in there) so we've got a few more years under our belts than our official three-year badge of honor would have you believe.

I'm really lucky. I have a pretty rockin' marriage. Sure we fight and get snippy or stay up until 1am with the occasional shouting match, but we also have a lot of fun, take care of each other, and stand by one another. I'm very grateful for sharing my life with Larry.

So, it makes this next sentiment sound a bit ungrateful, but I'm going to own how I feel: after three years, I thought we'd be parents by now. You can see how that might not be the most grateful thing to think of or say the day after your wedding anniversary. The thought flittered through my head at one point yesterday, and I deliberately pushed it out. Not today, I told myself, today is about celebration. Today, I feel awful that I feel this way at all.

When we got married, in fact, on the first day of our honeymoon in front of Peter Pan's Flight in the Magic Kingdom, we talked about our family planning timeline. Three years, we told ourselves. I, of course, always bet on the early side of things so in my mind at the time I'm thinking: three-year anniversary = babymaking night of bliss. And of course, because the media has told me so, BAM! September 2011 baby it would be. In a way, finding out just a few months after our first anniversary that I have POF was a blessing in disguise, saving us from heartache later down the road and pushing our timeline back even further.

And, as it turns out, we're still basically on track. I casually, off-handedly asked Larry the other day if he thinks I'd be pregnant by 30 (this very stubborn benchmark I'd set for myself years ago) and he thinks so. I may not be popping out a baby on May 25, 2012, but well on our way. We're hoping to get the DE/IVF ball rolling by December. So technically, we're right on target with our original plans.

Still, even with my diagnosis, I feel like there's this sense of urgency, even though in a lot of ways, infertility allows us to really put family building on our own timeline more than just natural conception. My biological drive only exacerbates the "you can't do this the way you wanted to" scenario.

Which brings me to our dear John Locke.

No, not that John Locke. This John Locke:

Locke had a saying on LOST: "Don't tell me what I can't do." It was his mantra. Did that drive him on an insane power trip that nearly cost the lives of all the islanders, including his own? Yes, but now we're straying too far from my metaphor.

Shocker: I don't handle being told "No" very well. I'm a fighter. Some might call me stubborn or even needy, but what it boils down to is that I put up one helluva fight. I wanted to be a mom by age 30 and/or my third anniversary, whichever came first. I'm told I can't have my own children so making those milestones might not happen the way I hoped I'd be able to.

And thus, the John Locke Approach to Infertility™: Don't tell me what I can't do.

Like John Locke, instead of making me power-hungry, being infertile has made me baby-hungry. Hm, that sounds uncessarily cannabalistic. Infertility has made me motherhood-hungry. So while I feel bad about how I feel today, I own it. I'm not pushing it aside or wallowing in it. I take ownership of the fact that I've been told I can't have something I really effing want... which of course makes me want it more.

And like Locke, I'll have to get creative in order to get what I want. For Locke, that meant pushing a button every 108 minutes, killing a Portuguese mercenary, and periodically traveling through time (yanno, like ya do). For me, it means using donor eggs and utilizing IVF.

But don't tell me what I can't do... because I'm only going to fight that much harder to do it. I've got the fighting spirit down - now I just need the patience.

Dear Media: You're Not Helping

Warning: ranty post ahead.

The media has never really been kind to infertility. Then you get movies like Baby Momma and the ever horrifying The Backup Plan that kind of muck things up once in awhile. Only recently have we started seeing more empowering coverage such as Self Magazine's ground-breaking infertility article last August and shows like Giuliana & Bill. That said, we still have a long way to go.

Which leads me to my first point. Dear Media: Leave Guiliana and Bill Rancic alone.

Hang in there, Guiliana.

I realize that's a loaded statement given the fact that they've created a reality show based primarily on their infertility experience. Also, in full disclosure: I haven't watched their show, but I've followed along in online updates. They did something pretty brave by putting their infertility struggle in a very bright public light, and I applaud them for their courage and resolve. I can't even fathom coping with a miscarriage on national television.

So I was rather annoyed when I read an interview with Giuliana, titled "Giuliana Rancic: We Are Done With IVF For Now." The not-so-subtle spin there? The Rancics are quitters. When I clicked through and read the interview, I was even more infuriated that the question immediately following "how are you handling your miscarriage" was "Have you considered adoption?"

*facepalm*

No! Gosh! What is this "adoption" you speak of, oh wise media outlet? The thought has never crossed the minds of couples who can't have children. Goshemgollygeewhiz what an idea!

Why - why - is that always the first question other people ask in the wake of infertility? It's insensitive and just plain rude. I'm not knocking adoption by any means, but man - give this woman a break. She just lost a pregnancy following an aggressive IVF treatment. Have some respect.

It doesn't matter if Guiliana and Bill Rancic have a TV show or not. If they want to take a break from IVF, so be it. IVF is no walk in the park and no couple should ever feel like they're quitters just because they want to take a break, whether it's IVF, DE, IUI, or even natural conception. Sometimes you just need a break from the babymaking madness - and that deserves respect, not rejection.

. . .

Seriously. Please close your mouth.

Rant #2. Dear Media: Stop perpetuating the idea that getting pregnant, especially as a teen, is super easy and sort of cool.

Kim Kardashian: let me just file this under "topics I never thought about which I'd blog." But I'm getting ahead of myself.

You may have heard that there's apparently something in the water in at Frayser High School in Memphis, Tennessee: 90 young women are currently pregnant or have had a child this academic year. Granted, the school has a program for teen moms, so the superintendent claims it's a "magnet for pregnant teens."

Let's all just have a moment to scream silently: "90 pregnant teens in one high school and I can't score even one positive pregnancy test ?!"

Sweet, I feel better. You? Fab.

So then Kim Kardashian opens her big fat famewhore mouth (I know, not the most feminist-empowering or politically correct word I could use but let's face it: I'm callin' it like I see it) and blames the whole mess on MTV's Teen Mom. Two of the women from the show rightfully fire back at Miss Kimmy's holier-than-thou stance, reminding us that: "she made a sex tape when she was younger and she wants to bash the girls on Teen Mom?"

Word, Teen Mom lady, word.
 
On the other hand, I can understand where Kim "Wait, Why Am I Famous Again?" Kardashian is coming from. Much like the "pregnancy pact" drama of last year up in my neck of the woods, teen pregnancy is a subject the media loves to glamorize. Exhibit A: the film, Juno - because having babies at 16 is all iconic t-shirts and cheeseburger phones.
 
The issue I take is that there is a media perpetuated and culturally dictated message that if a young dude so much as breathes on a young lady, BAM! Teen pregnancy. (That's been one of my biggest gripes about abstinence-only sex ed in high schools.) At 17, I was super paranoid about pregnancy... and I was still a virgin! That's how paranoid I was. So, color me shocked when just a decade later, I'd like to get knocked up and I find out that all of those media messages and the borderline-Puritanical tone of high school health classes are a lie. That no, it's actually not that easy to get pregnant and millions of twenty and thirty-somethings have this idea that they'll land a bun in the oven on the first few tries.
 
And then millions of us wait another month or two longer to talk to our doctors because, it's just a little horizontal mambo, how hard could this be? Everybody (media, society) said this would be easy. Birds, bees, and all that jazz.
 
It's irresponsible, The Media. It's just fucking irresponsible.
 
We need the media to talk more responsibly about young women's health, not stories that turn babies into damned matching accessories. We need young women to a) thoroughly understand what's happening in their bodies and b) to recognize when things aren't right. We need young women (and men) to know that 1 in 8 could be them in 10 years, 5 years, next year- but they didn't even know it because they didn't feel empowered enough to talk to their doctor. We need high risk young women and men to think about fertility preservation - they might not know at 16 if they want to have children, but they should still have the chance if they want to later in life  and so they need to know how to talk to their parents and doctors about it now.
 

Because seriously? I should never have to agree with Kim Kardashian on anything. Ever.

Night of Hope Recap

Night of Hope was simply amazing. Held at the very swanky Guastavino's in New York City on Tuesday, September 28, RESOLVE put on one classy gala celebration. Here are my pics from the night.

The lady in red? That's me. That classy lookin' guy in the suit? That's Larry. The fancy lookin' lady in the black pantsuit? My mom Debbie :) And the two other women holding awards in that picture with me? Those would be (from left) Best Blog winner Julie Robichaux, aka, A Little Pregnant and Best Book winner Pamela Tsigdinos, author of Silent Sorority. Oh! And my 1 pic with a celeb: Alisyn Camerota from FOX and Friends Weekend was the emcee for the evening. All the rest of the details after the cut.

Larry and I left bright and early Tuesday morning after making a quick pitstop to Target so I could pick up an evening bag - a girl's gotta have a complete ensemble! We made it to Brooklyn by lunchtime and met up with a friend of ours and had lunch at the famous/omgdelicious Junior's Deli. They are apparently famous for their cheesecake, but sadly, we didn't sample a slice as we were running short on time and we wanted to save room for dinner (more on that deliciousness later). It was great to catch up with Jen who we hadn't seen since her wedding last year and then we were off into the wilds of NYC streets to get to our hotel.

We stayed at the Marriott East Side, made possible only by cashing in all of Larry's Marriott points. It's basically across the street from the Waldorf Astoria, so you can probably guess as to what a nightly rate might be there. We were given the option of a queen bed on a high floor or a king bed on a lower floor. We thought "higher floor, better view" but instead we were looking at the back of the building and thought, hm, let's splurge for that king room. (Oh we were TOTALLY those guests that went up to the first room and changed our minds.) So as we're waiting for a bellhop to key us into our new room, we notice there's a lot of activity on this new floor. When the bellhop lets us in, he says, "I hope you don't mind the Secret Service guy on the terrace next to your room."

Turns out, Vice President Biden was staying in our hotel for the UN Conference this week. That would explain the unusually large amount of NYPD around the hotel and those guys in suits with ear-pieces in the lobby. And yes, there was a guy on the terrace ledge next to our room scoping out everything. Larry has been on a 24 kick lately so he was all like, "It's just like Jack Bauer!" and I replied "Well, Jack Bauer doesn't need to see me get dressed," and I shut the shade. We then made jokes about the no-fly list and bugs in our room as I hustled to get ready.

What I have failed to mention is that I still hadn't finished writing my speech. I had written a draft in the car that Larry thought was nice, but once we were in the hotel and I read it aloud again, this time without the distraction of the radio and traffic, we both realized it was crap and I had to rewrite it. It was 4pm. The event started at 6pm.

Larry insisted that I not memorize it but I was too rushed to try and write the whole thing down, so I ended up typing it as a doc on my iPhone. I know, I know - nerd. I own up to that. Before we left I raised the shade and the Secret Service guy was gone, like a whisper in the night. Cool... and admittedly creepy too.

Then we rushed to get a cab at 4:30 because I figured there would be road closures and rush hour traffic and... we got to Guastavino's in about 10 minutes. I didn't have to be there until 5:20. I proceded to walk around the block practicing my speech and trying to calm my nerves. Finally, at 5pm we went in. When I checked in, I had a lovely bouquet of roses waiting for me from Dr. Lawrence Nelson. He and I have been in touch the last few months and he was scheduled to attend but couldn't at the last minute. It was a really sweet gesture. I was greeted right away by people who knew me by face from my video and as I walked around, I realized that more people there would know me from my video than I would know them... it was a very strange realization and I suddenly felt like I was under a microscope.

As effervescent as I can appear to be in public, it can still be a challenge to mix and mingle for me, especially where the ratio of personal recognition did not favor me in the least. Suddenly, I got VERY nervous for the rest of the night.

I was relieved then, after a quick walkthrough of the stage area upstairs, to see my mom standing with Larry when I came back downstairs. She looked radiant! We got ourselves some cocktails and had a seat. As more folks came in, I said hi to colleagues and finally got to meet several people I had only met online or over the phone - it was great to finally meet these folks in person (like Julie & Pamela). I even managed to stumble a very awkward hello and introduction to Sherri Shepherd, one of the hostesses of The View who was there to accept the Hope Award for Achievement on their behalf that evening. (Her speech, by the way, was hysterical and poignant: "We didn't have insurance so we put the whole IVF cycle on our Amex. Now we have like, 400,000 Sky Miles thanks to our son!")

The evening got underway with a special video message from Guiliana and Bill Rancic as they couldn't be present to accept their award. I had no clue who they were (and still kind of don't because I never watched The Apprentice or E! News) until I looked them up on my phone that night. But apparently, they have a new reality show debuting next Monday on the Style Network that chronicles both their relationship and their infertility journey. In fact, I just watched the teaser trailer online and now I'm all teary-eyed! It looks to be the kind of awareness-building show our community needs right now.

Dinner was delish: flat-iron steak, grilled asparagus, stuffed potatoes, and a delicious salad. And of course: wine. I had to slow down on the cocktails because I hadn't eaten too much and I didn't want to be sloshed when I went to accept my award. (Although, it certainly helped calm my nerves.) At the last minute, I decided to write out my speech and began frantically copying it onto the back of my logistics sheet with the awards order and room layout guide I got when I checked in. Then, it was go time.

I got up one award before mine and waited in the holding area. Jeff Silsbee, Marketing Leader for Merck Pharmaceuticals, would do my introduction. We had a minute to chat before going up and he said it was great to meet me in person after seeing my video. During his intro speech, he mentioned that his team at Merck was very moved by seeing my video. I was floored. I had no idea it had been seen by the Fertility Marketing team of a major pharmaceutical company. They showed a 60 second clip of my video and it was so strange to see a) the video and b) myself on the big screen (two big screens actually). I felt like someone unleashed a whole net of butterflies into my stomach and throat as I was called up to the stage.

Click here to see the full video of my entire award acceptance, including my speech.

The whole 7 minutes from introduction until I came down from the stage felt like a blink. Before I knew it, I was back in my seat hugging my mom and kissing Larry. Afterward we headed to the dessert reception, where I barely ate as person after person came up to me to bestow congratulations and compliments. I am certainly grateful for all of the well wishes; I was just very overwhelmed and VERY out of my element. Thank G-d for Larry- he's a schmoozer by nature- so he helped me work the room and reminded me to hand out my business cards. I got to talk more at length with Jeff; I met Jennifer Redmond of Fertility Authority and we chatted about my possibly writing for them soon; Preya Shivdat, founder of Fertile Dreams, a grant-giving non-profit for couples struggling with IF; and had a very interesting conversation with Dr. Ali Domar of the Domar Mind/Body Center - she's inspired me to seek a second opinion of my diagnosis; I met fellow awardees Renee Whitley and Lee Rubin Collins, both very inspiring women who take advocacy to its highest levels in the US.

I'm sure there were lots and lots more fantastic people that I met, but honestly, the night was such a blur it's hard to remember everyone. If we did meet and forgot to exchange cards, please do feel free to email me, find me on Facebook or Twitter. All those handy links are on my sidebars.

In all, it was a simply gala evening and I enjoyed myself immensely. Thank you so much to RESOLVE for hosting such a wonderful event and for this incredible honor you've bestowed on me. Now I have a very pretty (and very heavy!) crystal award vase to proudly display on one of the four hearths we have in our new home.

...Although, as Julie and I were joking, we might use them for snack storage. Yanno, just eat some M&Ms out of it from time to time.

Larry is convinced Night of Hope is my tipping point. Tipping into what... I'm not sure yet. But I hope it's toward big opportunities, a chance to raise awareness and to continue my advocacy, and hopefully, somewhere soon down this path - towards building our family.

MA Infertility Mandate Update Signed Into Law!

Gov. Deval Patrick signs the Infertility Mandate updates
into law on August 10, 2010. (Photo courtesy of Davina Fankhauser.)

A little late on posting about this, but a major victory was achieved in Massachusetts last Tuesday, August 10: Governor Deval Patrick signed MA S. 2585 into law. The infertility mandate language updates of S. 485 were folded into a broader healthcare bill that had both State House and Senate unanimously supported, and now the Governor has sealed the deal. The new law will go into effect 90 days from the date of signing. More details about the law and general updates on my life after the cut.

It was tense for a solid week between the passage of the bill at the State House and whether or not Gov. Patrick would sign it; it was assumed he would, but there was no guarantee and there was a tight turnaround form the last day of legislative session here in MA and the last date he could actually sign the bill. But at the eleventh hour, Gov. Patrick came through. It was one of the moments where I was really proud to be a constituent in a state where not only my concerns (and those of hundreds of others) were really heard but where our administration supports family-friendly, progressive healthcare legislation.

I have to give HUGE thanks to Davina Fankhauser and the wonderful women at RESOLVE of New England who lobbied to make this a reality, and of course to all my friends and readers and followers who contacted their legislators here in the Bay State. Nice work everyone :)

That being said... our work is not yet done. As great of a victory as getting the IF Mandate updates into law, Rebecca Lubens, Executive Director of RESOLVE of New England was quick to share two alarming pieces in the Boston Globe that ran last week. The first was an op-ed piece that was against the insurance mandate healthcare bill that Gov. Patrick just signed into law. As usual, infertility treatments were thrown under the bus as expensive, elective treatment that drives up the cost of healthcare for everyone. It's the same old (and largely incorrect) argument that our community hears all the time.

The second op-ed article specifically addressed the use of ICSI in infertility treatments, and tread dangerously close to promoting eugenics. Again, it cast a general sense that couples with IF are selfish in their desires to have children.

We may have won some victories at the MA State House, but we have a helluva battle against the media. Infertility has been assaulted by the media lately; they love to pick on us as their favorite target. We need to not only lobby our legislators, but our media outlets as well... because if we can't make a dent in this anti-infertility mediated culture war, we are going to be swallowed whole.

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Still living between homes and up to my eyeballs in stuff with work. But, Larry put it best last night: "You seem really happy." And it's true- my job satisfaction is pretty damn high, which is a nice change. I'm feeling great about heading into this academic year. As for the house, we're supposed to close next Friday, and all of the powers that be that make this closing happen are optimistic that we will in fact close on that date. I'm practically salivating at the chance to get our stuff out of storage and into the house. Lol, it's been too long since I've seen those beautiful wide-plank pine floors :) Also, I discovered Restoration Hardware last night. That store will be my downfall... I want to furnish the entire house in nothing but their ungodly/insanely expensive furniture! (Realistically, this will never happen. I think I'll get, at most, these pillows.)

PS- there's still 2 weeks left to enter my Big IF Bloggy Giveaway!

A Belly Full of Fire: A 5-Part Series on Infertilty Advocacy

This week into next, I'm going to get up on my soapbox and talk about something that has really shaped and defined my life in the last few months: infertility advocacy. I invite you to read along and follow this five-part series as it posts each weekday between today and next Wednesday. (And yes, it's deliberately timed with this month's ICLW.) So take a seat and get comfy - I'm not one for brevity when it comes to topics about which I am passionate. Prepare to do a little digging in your soul to find out what moves you, what drives you - what fuels the fire in your belly.

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"We are being ignored."
-Barbara Collura, Executive Director of RESOLVE

"If you're not going to fight for yourselves, how is anyone else going to fight for you?" -Debbie Wasserman Schultz (D–Fla.)

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A Belly Full of Fire, Part One: Advocate or Abdicate

If you haven't read SELF Magazine's article on infertility in their August issue, do me a favor: click on this link, open it in a new tab or window and read in its entirety after you read this post. When I first read it earlier this week, I felt like I had been punched right in the stomach, my eyes bulging, my face red and contorting as all the air escaped from my lungs. Had I been doing all of this advocacy work for nothing?

When I tell people that no, I don't do infertility advocacy for a living, they are shocked. This blog, RESOLVE of New England, my video- I do it all in my free time. I work for a small private college in the housing department. My days are spent dealing with roommate conflicts, programming forms from RAs, and developing a comprehensive new First Year Experience program for our incoming freshmen this fall. I'm in this line of work because that's where my non-committal communications degree lead me. Between working 35 hours a week and devoting every waking hour to my advocacy efforts, I have be blunt with y'all: it's exhausting. I have been running myself ragged for the last couple of months, but I do it because advocacy is vital. Advocacy feeds my soul.

Advocacy is necessary because of the veil of shame and silence that surrounds the 7.3 million people in this country who cope with infertility every day. Jennifer Wolff Perrine raises this same question in her article for SELF: "It’s a strange dichotomy: how can a health issue that gets so much ink be shrouded in silence?"

Infertility is a sexy media topic right now, one that has been taking a substantial amount of heat recently. Take for example yesterday's article in Newsweek: Should IVF Be Affordable for All? After the Nadya Suleman fiasco, celebrity gossip surrounding stars like Celine Dion, damaging trite portrayals in Hollywood like Jennifer Lopez's The Back-up Plan and the public's critical gaze on affordable healthcare in a gloomy economy, this Newsweek article just adds more fuel to the fire of opposition on infertility treatment coverage:

Whether infertility should be classified as a disease or a socially constructed need is a dilemma at the center of this debate... A complicating factor, according to St. Luke’s (Dr. Sherman) Silber, is that up to 80 percent of infertility cases are caused simply by increasing maternal age. “It’s hard to call infertility a disease. It’s normal aging,” he says.

Dr. Silber, I hate to argue with an MD, but infertility IS a disease. Just ask the World Health Organization: "This recognition from WHO of infertility as a disease represents a significant milestone for the condition." (Source.) With distorted media images of wanton career-driven thirtysomethings and desperate perimenopausal women salivating to have their own baby bump, Silber's statement is not only inaccurate, but irresponsible as a cited expert in the field. Thank you Dr. Silber, for setting back 25+ years of hard work in the infertility advocacy movement.

With all of the vitriol being directed by the media at infertility- its patients, its treatment, and its very validity as recognized medical disease- our advocacy efforts are needed now more than ever.

And it requires infertility patients to take the biggest, most difficult step of their journey. Infertility patients need to start speaking out publicly.

Look, I'll tell you right now: it's not easy to come out of the infertility closet. I was diagnosed on March 18, 2009. The first phone call was to my husband. That evening, we called both our of parents and I called my sister. Two weeks later I sent out an email to two dozen of our closest friends explaining the situation and shared the link to this blog. If infertilty was the new game, I wanted it to be played by my rules. Not once have my friends judged me, asked "so when are you having kids" or told us to relax. We receive a bevy of advice- some helpful, some not- but always extremely well-intentioned and expressed with sensitivity and compassion.

I know Larry and I are the extreme example in this case. I know there are plenty of couples who do not have this same level of support. But you'll never know if you don't try. To this day, I don't regret ever telling friends that I was infertile.

Not only did we find out just who indeed were the folks that cared about us, but just how much they cared. When I uploaded my video and finally blasted it out across the internet, people I never thought would bat an eyelash came out of the woodwork to tell me their stories, to thank me for being so brave to put my name and face out there with this label. I was floored. People I had worked with, gone to high school with, a friend of friend... they picked up on that energy and finally felt comfortable enough to share their stories with me.

I asked in my video: "What if I stopped hiding behind my fear? What if my story can help millions?"

If my story- this one little random woman from Boston- could touch hundreds and hundreds of people (seriously: there are hundreds of emails in my inbox and I'm still getting emails and comments from people who have come across my video)...

Could you imagine if we had 100 people willing to publicly speak out about their experience with infertility? What if we had 1,000 people running a 5K charity race? 10,000 people marching on Washington?

Grassroots advocacy is there for our taking right in front of us and we as a patient community cannot get out from behind our own self-imposed sense of shame and silence.

Oh yeah, I totally just said that.

But so does the SELF Magazine article. Wolff Perrine writes:

Women's silence hurts more than themselves. It ensures that infertility remains an anonymous epidemic, with less funding and research than other common medical problems receive.

She cites Lindsay Beck, founder of Fertile Hope:

Because no one wants to discuss infertility, "nothing gets done about it," says Lindsay Beck, ..."Infertility is where breast cancer was in the 1970s—completely in the closet... For the average fertility patient, there is no united front."

And as a patient community, we're shooting ourselves in the foot when even those who successfully resolve their infertility choose not to acknowledge their past pain:

However someone resolves her infertility, the tendency is to want to put her struggles behind her. "People want to forget," says Collura of RESOLVE... "We do our damnedest to instill in our members that they need to take a stand and help the cause or the same thing is going to happen to the women who come after them."

Infertile couples who have found resolution owe it to their children to speak out, to own their disease and walk with it even after they have beaten it.

So what's an infertile to do?

Take the pledge. Start using your real name. Share your blogs with your family and friends. Talk to the media. Call your legislators. Volunteer with your local chapter of RESOLVE. Write grant proposals. Stop caring about what other people think and instead focus on what other people can do to help.

Ladies and gentlemen: I give you "advocacy in a nutshell." No seriously - that's really all that it is. You don't have to have your advanced degree in public health. Patient activism is pretty simple: just tell everyone your story and why it matters.

If all of this seems like too much, then just start by going to RESOLVE's website and take the pledge to do something. RESOLVE says it best: "It's time to stop, look, listen and act. It's time to pay attention." Then get your support network of friends and families to take the pledge. Don't be embarrassed - just send those emails and I'm sure you'll be surprised to see who's willing to stand by your side in solidarity.

Our stories are long overdue to be heard by the public. But we have to tell our stories out loud if they're ever going to be heard.

The bubble of silence, shame, and ignorance surrounding infertility is ready to burst.

Either we publicly advocate for ourselves or we abdicate the right to demand change.

. . . . .

If this post has moved you, please share it online: tweet it, Facebook it, blog about it... This is how a grassroots movement begins.

Today I wrote about why advocacy matters on the community level. Tomorrow I'll talk about why advocacy matters on a more personal, healing level for infertility patients. Stay tuned for A Belly Full of Fire, Part Two: The Wounded Healer.

Photo by Natalie Lucier via Flickr.

Women's Health Matters: Period.

Sit tight: this post is a doozy.

I'm a Vagina Warrior.

I realize this is quite a startling way to begin my post, but being a Vagina Warrior drives me, it shapes the way I look at the world, and fuels my passion for women's health advocacy. What exactly is a Vagina Warrior? Well, it stems Eve Ensler's The Vagina Monologues; I performed in five productions of the show throughout college and two years after I graduated at the first college where I worked. The mission of the V-Day movement is near and dear to my heart, and a Vagina Warrior is someone who fights for women, women's rights both home and abroad, and for the safety and health of women and girls everywhere. My work in health advocacy, particularly around infertility, is how I assign my Warrior status (and when I say Warrior, think dorky Xena sporting Old Navy rather than leather-plated skirt).

So I've got three things my inner Vagina Warrior wants to cover in this post, all related to our periods: Tampons. The Red Tent. Project Vital Sign. Sound interesting? Read on.

So I was thrilled when I saw the new Kotex U commercials:

I am in no way being compensated for this. This was too damn awesome not to share.

Thank you, Kotex, for keepin' it real. I haven't had a "real" period in months, technically years if you count that fact that while on birth control, it's not an actual period as a result of ovulation, rather, it's withdrawal bleeding from a drop in hormones. I'm still experiencing breakthrough bleeding on my HRT (the pill), and I had to use a tampon for the first time in over a year last month. I stared at it like, "You want that to go where?" amazed at how quickly I had forgotten all about this strange feminine product. So when I saw this commercial I appreciated that it wasn't trying to sell me this flowered up idea but was like, "Hey. Hey you, you with the XX chromosomes. You're of menstruating age and you need a practical solution to your monthly biological phenomenon. Here, have a tampon." 

I appreciate Kotex's candor, because women don't like to talk about our periods. It's something society doesn't talk about... like infertility. (Funny how women's problems are marginalized into silence.) Which brings me to my next Vagina Warrior subject: the Red Tent Temple Movement and the forthcoming documentary: Things We Don't Talk About. 

 Anita Diamant's The Red Tent is an inspiring fictional retelling of the story of Dinah, Jacob's only named daughter in the Bible. The Red Tent was where the women of Jacob's tribe gathered for their monthly cycles, for births, miscarriages, and shared sisterhood. (If you haven't read it, go do that this summer. And keep a box of tissues handy when you do.) 

ALisa Starkweather has taken the fundamental ideas of The Red Tent and translated them into a movement of women gathering in sacred spaces to share in each other's sisterhood. Our temples are bedecked in red fabrics and welcome to women of all ages, menstruating or otherwise; the Red Tent Temple Movement is about restoring women's dialogue and celebrating the feminine life experience. The Red Tent Temple has allowed me to restore what I felt was lost- my sense of monthly cycles. While I may not bleed every month, I gather with my friends, my sisters near each new moon at the Salem RTT, and that sense of womanly rhythm has returned to my life. Isadora Leidenfrost will be exploring this movement in her forthcoming film, Things We Don't Talk About: Healing Narratives from the Red Tent. I get the sense that this is going to be an important film, and wanted to put this on folks' radars.

Still with me as I talk about all these "woman" problems? You are? Great. Because my biggest problem is calling Aunt Flo a problem. She should be a welcome guest, not a nuisance! CNN recently published an  article online about women's attitudes toward their periods. The article is (fairly) balanced, but the thing that got me was the general tone that "Ewww! Periods are icky and gross and cumbersome." (Yes, I know for some women, they dread their period: heavy flows, debilitating cramps, nausea, and worse.) It was the title that got me: Periods - who needs them anyway?

Who needs periods? Every woman does, that's who! This leads me to my third and final soapbox moment of this post: Project Vital Sign. Sponsored by Rachel's Well, a non-profit women's health organization, Project Vital Sign is working to create a national movement for educators and health professionals to recognize menstruation is just as much of a vital sign as heart rate, blood pressure, or temperature.

Allow me this divergence... I'm still reconciling my feelings on hormonal birth control pills. On one hand, it kept my ovarian cysts at bay all throughout college, after I had already lost an ovary to a torsioned cyst. On the other, it masked my POI for what could have been years. Now they replace the hormones my body cannot produce naturally. I've had this weird give-take relationship with hormonal birth control, so I'm still not sure where my allegiance lies. The point of this brief divergence is to say that eliminating our periods or masking them is a dangerous game, as we lose a basic sign of our reproductive health. My personal thoughts on birth control aside...

Our periods give us a clear picture of our reproductive health and even our overall health. The fact that the media and society paint our periods as nuisance, gross or insignificant is infuriating: it sends the message that we should do away with them entirely, reinforcing broader social constructs of shame, embarrassment, and silence surrounding women's health issues. I know I'm not going to change society, but I'll be damned if I don't try. And look, don't take my word for it (cue Reading Rainbow music) - Dr. Lawrence Nelson at the NIH/NICHD agrees in a recent piece on NPR:

"There's this disconnect," says Nelson. "The menstrual cycle is just seen more as a nuisance by many women. But actually, [when periods are regular] it's the sign that the ovaries and the whole endocrine system related to reproduction is working the way it should."

My points, after this whole long, ranting post?

Love your period. 

Celebrate your womanhood. 

Advocate for women's health issues.

Because women's health matters. Period.

Calling All Bay State IF Bloggers!

Do you live in Massachusetts?

Are you living with infertility or have struggled with infertility in the past?

Do you blog?

I am looking for you!

I'm working to create a network of Massachusetts-based infertility bloggers. We are extraordinarily lucky to live in a state with comprehensive mandated IF coverage, and while we lead the nation in terms of what's mandated, it's not perfect. This is where I'm hoping that our collective voices can help make important changes to the current mandate parameters regarding infertility.

If you are a Massachusetts-based infertility blogger, please take a moment to fill out this form. I'm in the data-gathering process right now. The information will be sent directly to me and shared with no one else at this point. In the future, I'd like to be able to share this network with RESOLVE of the Bay State, the media, and legislators. You can opt out of sharing any or all of your information on the linked form. I know IF is one of those rather personal things you might not want out there: I know not everyone is in a position to be as "out" as I am, and I totally respect that.

Please feel free to tweet this, repost this to your own blogs, Facebook, or message boards. The more places I can get this post out there, the greater the chances of building up this network!