Showing posts with label RESOLVE. Show all posts
Showing posts with label RESOLVE. Show all posts

April 24, 2011

Bust An Infertility Myth: I Am Not A Broken Woman.

In retrospect, it was fitting that my last performance in The Vagina Monologues was reading "I Was There in the Room." It's a haunting, reverant, glorious monologue from Eve Ensler's perspective of watching her adopted son's child being born. She is present in the physical moment, in the space itself, but Eve is not the one birthing another. It's a noticable void in The Vagina Monologues: there's no monologue describing birth from a birthing mother's perspective. Just Eve's voice as the outside observer.

I often wonder if I will always be a kind of woman who is only there in the room: always observing, but never experiencing the moment myself.

. . .

When I was 18, I had my ovary removed in emergency surgery. Assured that my fertility would endure, I still felt like I was somehow broken. I had written a poem at the time about feeling like a tree with a broken branch.

. . .

She is a Tree of Life to those who take hold of her; those who hold her fast will be blessed. (Proverbs 3:18)

. . .

The Vagina Monologues were instrumental in my healing process back in college. They allowed me to shape and define my womanhood, a blossoming young adult woman myself. Performing three years in a row, the show gave me a space to take pride in my womanhood: to celebrate, cherish, and worship it. I performed another two times while working for another college; my final performance a visceral, but beautiful observation of the birthing process. It felt good to perform that monologue.

All this time, my soulmate was at my side. We celebrated, cherished, and worshipped each other. I knew we'd get married. I knew we'd have children together. This is just how it was supposed to be. And we did get married. We talked over our plans and agreed on May 2011: we'd begin our family. We'd give ourselves three years just as two, to grow to three (or more!) after that time.

I was worried about being down one ovary but remembered the assurance from my doctor from many years before: "You'll still be able to have children."

. . .

We had only been married a year and my puzzling symptoms at 26 simply didn't make any sense. In March of 2009, everything changed: premature ovarian failure.

In an instant, "the way things were supposed to be" was robbed from me. From us.

"I have failed you as your wife, as your soulmate, as a woman," I sobbed.

He held my face in his hands, looked me straight in the eye: "You are no less woman to me. You have failed no one. You're my wife and my soulmate and I love you."

"But I'm broken," I said in a voice, barely audible.

"No Keiko: you are not broken, I promise," Larry assured me. "We'll get through this."

. . .

Those years in college and in the years following, I took great pride and joy in being a woman. Sure, I griped about my monthly cycle: the cramps, the bleeding, the mood swings. But I still valued the work that my body was doing (or so I assumed at the time). I knew I was merely paving the way for my body's greatest test, and I would celebrate that too when the time came.

My body, my woman's body: a holy vessel of creation, power, life.

. . .

My infertility tried to rob me of that power. When I was diagnosed, I felt like Someone had taken a giant hammer and smashed my holy vessel to pieces. I am a broken woman, I would tell myself. I wove myself a blanket of shame and guilt.

Those days were the darkest, the days I felt robbed of all that I had celebrated and cherished about being a woman.

This was the myth I told myself.

. . .

In the past year, my voice has gained confidence, strength, and hope:

I am not a broken woman.

I am NOT a broken woman.

. . .

It's not that I think women should be baby-factories, let me be clear. Rather, I see the acts of conception, pregnancy, birth, and motherhood as sacred gifts in the womanhood experience. Our bodies then, are truly vessels of creative - in the truest sense of the word - power.

Yet my womb lies barren. My tree bears no fruit of its own. I am endlessly blessed to live in an age of modern science, where my womb can be made full with the help of a selfless other, a lab, and a little luck. There is no guarantee, but it's the chance I'm willing to take.

And if we can't conceive with help, then we are just as open to adoption. Motherhood without its traditional preceding acts is no less sacred; to parent is no less a gift.

. . .

So when I look at the past two years, at the vastness of what has felt like a decade but has only been just two years - I've come a long way. Each month at the Red Tent Temple, I remind myself and am reminded of all the joyous ways of being a woman in all stages. I leave my titles at the door: Barren. Childless. Infertile. Broken.

And I choose not to collect those titles when I leave.

I am not a broken woman.

I invite you to shed this myth with me. To bury this myth, to banish it from your mental vocabulary, to cast it out from your hearts. Say with me now:

I am not a broken woman.

I am NOT a broken woman.

Now keep saying this - out loud - with me:

I am strong and beautiful. 

I am a force to be reckoned with. 

I am wise and joyous and whole in spirit and grace. 

My infertility is only one facet of the many parts of who I am and I am not a broken woman.

I am not a broken woman and I have yet so many wondrous gifts to share with this world.

My Woman's Work has only just begun.


It's National Infertility Awareness Week. Infertility affects 1 out of every 8 couples... like me. Find out how you can participate and provide support to 7.3 million people living with this disease: www.resolve.org/takecharge. This post is part of the Bust a Myth Bloggers Unite project.

April 20, 2011

National Infertility Awareness Week 2011: What's Happening Around the Blogosphere

APRIL 24 - 30, 2011
National Infertility Awareness Week is literally just around the corner! NIAW stands for so many things in our community: support, empowerment, awareness-raising, hope. In many ways, NIAW is about community and how we strengthen each other in our journeys by raising awareness for our disease.

There are many ways you can get involved with NIAW and I encourage you to participate in ways that you're comfortable. Besides the ever-growing list of NIAW events happening all around the country, I wanted to take a minute to highlight some of the various things happening around the infertility blogosphere and what you can do right from the comfort of your own computer. Whether it's raising awareness via social media, an online book club, writing a blog post or entering a giveaway, there are a variety of ways you can get involved as an infertility blogger. Check out what's out there in the list below!


+ BLOG CARNIVALS

Bust an Infertility Myth: Bloggers Unite!
Sponsored by RESOLVE, bloggers are invited to bust a myth about infertility via a blog post. You can pick from RESOLVE's list of infertility myths or select one of your own. Each participating blog will then be considered for RESOLVE's Night of Hope Award for Best Blog.  Snag a badge and don't forget to add your participating blog post to the list here.

IF We Believe! A Blog Carnival about the Stories and Faces of Infertility
Sponsored by blogger Up, Down and Natural, IF We Believe! is a blog carnival with a mission of tearing down the veil of infertility, and being able to express all the emotions, and daily infertility experience from the highs and lows, and everything in between. IF We Believe! Anything Is Possible... Particpating blogs will be entered into a drawing to win 20 ovulation predictor strips. See Arpita's blog for more info and submit your post online here.

IComLeavWe: April 21-28, 2011
Hosted by blogger Melissa Ford of Stirrup Queens, ICLW is like a blog comment carnival. Bloggers sign up to be added to a list of participating blogs and commit to commenting on at least 5 blogs and returning 1 comment left on their blog each day of ICLW. It's a great way to find new blogs and April's ICLW always lines up with NIAW. Bloggers have until 11:00PM EST on April 21st to sign up for April's ICLW and must add an ICLW badge on their blog. Sign up here.


+ SOCIAL MEDIA AWARENESS CAMPAIGNS

Share Hope (#sharehope) Twitter Campaign
Sponsored by Clear Passage, the Share Hope campaign seeks to raise awareness in 140 characters or less on Twitter during NIAW. Beginning on April 24, tweet your infertility story with hashtag #sharehope. Each day of NIAW, one tweet will be selected as the daily prize winner and will receive a book by a well-respected fertility professional; each of those winners will be entered into a Grand Prize drawing for 20 hours of free hands on infertility treatment at Clear Passage Physical Therapy. See their website for full details.

NIAW Twibbon Campaign
Sponsored by RESOLVE and MyDestinationFamily.org, a Twibbon adds a tiny RESOLVE logo to your Twitter or Facebook profile picture. One simple click can help raise awareness for a disease that affects 1 out of every 8 couples in the United States. Click the link to add your twibbon today!

Download an Infertility Ribbon
Bloggers Whitney and Erick think it's high time the infertility community has their own ribbon- so they've made one to share online! Snag a version for your blog, your Facebook or Twitter profile pictures, or even add to your email signatures. You can really get creative. Check out Whitney and Erick's blog to snag the codes.



+ VIRTUAL BOOK CLUB

Sing You Home by Jodi Picoult
Sponsored by the Law Offices of Amy Demma, they'll discuss Jodi Picoult's new book: Sing You Home. They invite all of their friends from within the infertility community (both colleagues and those trying to conceive) as well as friends, families and loved ones who want to support those struggling to build a family. Join in the discussions and posts on their Facebook page today!



+ GIVEAWAYS, CONTESTS AND PROMOTIONS

Vote for Parenthood for Me!
You have until 11:59 PST on Friday, April 22nd to vote for Parenthood for Me for the 2011 Leading Moms in Business competition, sponsored by Discover. Parenthood for Me is a 501(c)(3) non-profit organization whose mission is to provide financial and emotional support to those building families through adoption or medical intervention. They raise funds to award family-building grants to those living with infertility. You can vote once daily, so do it today, tomorrow and Friday!

Save $5 on The IVF Companion During NIAW
Are you about to undergo your first IVF? Your third IVF cycle? Consider organizing yourself with The IVF Companion, a guided personal organizer with tons of resources for making sense of your IVF cycle. Check back after April 23rd to get the promo code.

Blogger Giveaway
Sponsored by blogger In Due Time, she'll be giving away items every day of NIAW. Check back on her blog for all the details.


*If you're hosting an event like these listed above and would like to be added to this list, send me an email to miriamshope {at} gmail {dot} com.

Soundoff! How will you be participating in National Infertility Awareness Week this year?

April 19, 2011

Surrogacy Lawyer Radio Show Update: MP3 Available Online

If you missed me on last week's The Surrogacy Laywer Radio Program with Evelina Sterling, you can download the show as an mp3 to listen to at your leisure!

Click here to download Premature Ovarian Failure and the NIAW/PETA Debate with Evelina Weidman Sterling and Keiko Zoll.

As the title mentions, Evelina and I talked about all things POF; Evelina spoke to the more clinical aspects of the disease and I shared my personal experiences as a patient. Evelina also shared how it's now referred to as Primary Ovarian Insuffiency. And of course, we saved a few minutes at the end to chat with Theresa about the whole PETA ordeal.

If you have 54 minutes right now, you can listen below:

April 14, 2011

Talking About POF Today on The Surrogacy Lawyer Radio Show

Do you have one free hour at 11am PST/2pm EST today? Want to know more about premature ovarian failure? Tune in to Theresa Erickson's The Surrogacy Lawyer Radio Program today to hear me and Evelina Sterling from Rachel's Well talk about POF, menstrual health, and share a few insights on this PETA thing.


More info about today's show:

Misconceptions abound about the range and limits of female fertility. Despite concerted infertility education efforts, both the public and young women almost always are shocked to learn that female fertility starts to decline at age 27. But one to four percent of women under 40 will be faced with the even more shocking diagnosis of premature ovarian failure (POF). POF is a loss of ovarian function occurring at too young an age to be considered natural, although premature, menopause. Not only will these young women potentially lose their reproductive capabilities, but they also are at greater risk for heart disease and osteoporosis. A variety of medical conditions can cause POF, but doctors can not always identify one.

On the April 14 episode of The Surrogacy Lawyer: Your Guide to IVF and Third Party Family Building, Theresa Erickson, Esq., will be discussing this rare, but devastating condition with Evelina Weidman Sterling, a highly respected health educator and author, and Keiko Zoll, an infertility blogger who was motivated to become an infertility advocate after her own diagnosis of POF several years ago. The show will air on Thursday, April 14 at 11AM PST/2PM EST on Voice America.

April 12, 2011

What I Learned from PETA & Why This Mattered

What a week folks, what a week.

It's official: all references to NIAW have been removed from the PETA website, including on that directing Features page that would take you to the contest page itself. Again: thanks, PETA - much appreciated.

I've had some time now to finally get some sleep, step back from Twitter for more than 20 minutes at a time, and really reflect on everything that's happened. Some people supported our efforts wholeheartedly (63 of you joined me in openly condemning PETA through blog posts). Some people didn't think that, of all the battles we face as a community, this was the battle to pick. Some folks remained silent by choice- for a variety of reasons, and many reasons I can respect and support. And some probably still don't even know anything happened at all last week. In the grand scheme of the looming government shutdown, discord in Libya, and mounting concerns at the Fukushima reactor in Sendai, Japan - I can see how some riled-up infertile folks yelling at PETA might seem like small potatoes in comparison.

As an infertile woman, especially the days where I've got baby on the brain pretty bad, I have to remind myself to keep my infertility in check, or rather, to keep my perspective in check. There are bigger things in the world than whether or not I want or am able to have children. I get that, but sometimes I don't always remember this when I all can think of is "When's it going to be our turn already?" So I challenge myself to keep it all in context.

So, after all of this, allow me to share What I've Learned and Why This Mattered.

What I Learned from Standing Up to PETA:

Take the high road when you're trying to argue a point.
It is so tempting and quite easy to resort to name-calling. Like I said, PETA is an Internet Troll with whom to be reckoned. It's so easy to fall into the trap of hurling insults and low-blow moves; after all, was not their campaign an insult and low-blow to us in the first place? To quote the ever famous Calvin, of Calvin & Hobbes: "Nothing helps a bad mood like spreading it around." It feels good to engage in some verbal mud-slinging.

I could have easily written a letter that said, "Fuck you, PETA!" That's certainly how I felt. Instead, I took the time to process through my gut emotional response to deliver a clear and (relatively) concise argument: "Dear PETA: here's why your campaign is not cool and here's what we'd like you to do about it." When all you're doing is throwing mud around, you still just end up covered in shit. And I don't know about you, but I hate doing laundry. I also want to add: be gracious. PETA didn't have to do anything at all, but they did, so it's only right (and polite) to say thank you.

Don't give up.
I'm a figher by nature. I fight for and within this community because others can't or won't for whatever reasons. I'm able to do so because I am infinitely lucky to have the support that I do; I know many others in my shoes who don't have the kind of support systems Larry and I have. I also know some people are just tired of fighting, and I don't blame them. I suppose it's just a personality trait for for me: I'm a passionate person. I give myself fully to the things and people about which I am passionate. Some people (my husband, my parents) might say I'm a woman who simply doesn't take "No" for an answer.

When emails didn't seem to be making an impact, I turned to the blogging community. When additional emails and posts from folks in the community didn't work, I took to Twitter. When Twitter didn't work, I started a petition. When the petition gained momentum, I approached the media. I turned to my colleagues in this field for help in not only lending their support, but spreading the word. One drop in the lake became a ripple effect in the community... and it worked.

Why It Mattered:

Every battle in this community is important, whether it's telling off the media, telling off PETA, or telling off our legislators. But it's not just about raising our voices in anger - it's about raising our voices in informed civil discourse. We don't have to shout to get our point across; we can speak clearly, intelligibly, and respectfully. When we organize ourselves and our voices into a coherent, passionate message, the effect is profound.

As a community, we were heard.
We were heard when so often we are not: when we disclose to others we're seeking IVF and we get the instant response comparing us to Octomom; when infertility is still up in the air as an essential benefit; when the media asks Giuliana Rancic if she's considered adoption immediately after her miscarriage; when people ask prospective adoptive parents if they're worried about whether or not they'll feel like their "real" chidlren; when the voice of the childfree, the of color, and the LGBT are lost in the greater conversation about infertility but whose experiences are just as valid and relative to ours. It was pretty hard to ignore us because we came out in such force.

As a community, we needed this.
In a patient community where we're already beaten down from tests, insenstive comments, BFN's, fall-throughs: this was a huge confidence booster. So often we don't feel like we have any control of our lives or our bodies, and yet here is an example of making a concious decision to stand up and fight back, to take control over how an organization chooses to exploit our community: and we did it. We regained a little bit of that sense of control that we lost. We gained back some of the confidence that may have been taken away from us. It felt good. And feeling good is something we always need as a community.

As a community, this inspired us to act.
I am still amazed at how many people chose to participate in some way, from as simple as sharing links on Facebook to writing letters of their own. To every person who signed the petition, I hope you'll write your legislators. For every person who posted a blog, I hope you'll participate in the Bust a Myth Bloggers Unite Project for National Infertility Awareness Week.

I hope this experience gave everyone who participated the confidence to turn your passion into action. I hope this inspired EVERYONE to really, really consider participating in RESOLVE's Advocacy Day either in DC or in your local districts on May 5th.

All of this mattered because it has paved the way for us to do even greater things as and for this community. I'm of the opinion we owe it to each other, because at the end of the day, we're all fighing for the same thing, right?

It matters because if we put good out there, hopefully we'll get a little bit of that good back. And folks: it is good work that we're all doing. Let's keep it up.


Don't forget: I'm appearing on The Surrogacy Lawyer Radio Show this Thursday, April 14th, with Evelina Sterling from Rachel's Well. Tune in here online at 2PM EST (11AM PST) to hear us talk about premature ovarian failure, menstrual health, and more updates about PETA.

April 11, 2011

Reflective thoughts on PETA forthcoming - promise!

Hey folks - I've been meaning to post a nice reflective piece on this whole experience. It has been a whirlwind of a week and weekend, but I'm literally running on empty right now between work and some after work commitments (in addition to getting my house cleaned/organized for visitors in a couple of weeks). My schedule, as it always does in April, has blown up.

I'm hoping to have something up by tomorrow night at the latest, but wanted to share a couple of quick, cool things:

1. The NIAW language that still remained on PETA's directing Features page has been removed as of 12pm EST today. Victory complete!

2. We got media coverage in Canada... under "Weird News." Lol, I'll take it.

3. We got an amazing and inspiring summary of events from Rachel Gurevich from infertility.about.com: How Blogging, Online Petitions, Phone Calls, and Email Writing Really Can Make a Difference

4. I'll be appearing as a guest with Evelina W. Sterling from Rachel's Well on Theresa Erickson's The Surrogacy Lawyer Radio Program THIS THURSDAY at 11AM PST/2PM EST. Tune in online here!

So stay tuned for (what will hopefully be my last) blog post about PETA and this whole experience tonight or tomorrow.

And now, I'll leave you with another picture of my cats, because they are quite frankly - adorbs.

That's right, our cats hold paws. Behold the cute.

April 10, 2011

PETA Update #5: An Email from PETA President Ingrid Newkirk

Knock me over with a feather this morning when I actually got an email from Ms. Ingrid Newkirk herself:


FROM: "Ingrid Newkirk" [IngridN@peta.org]
TO: Me
DATE: Sun, Apr 10, 2011 at 7:48 AM
SUBJECT: Thank You.
mailed-bypeta.org


Thanks, we will look at that right away.

Also, thank you very much for your adoption of the beautiful cats and for suggesting people help their local shelters. We are not in favor of “no kill” terminology as it leaves the dirty work to the open admission shelters. You might enjoy our other website, helpinganimals.com. We operate three full time spay/neuter clinics for indigent people’s animals, and others who will not or cannot afford full price. It not only does spays/neuters, but helps with fleas, ear cleanings, even surgeries for animals who spend their entire lives chained to a dirt patch or living under a trailer, etc. You may wish to look at and pass on the links of some of the animals who are taken in, that “no kill” shelters will usually not touch as they are not adoptable. Someone has to touch them. We get a lot of criticism for being so “impure” as to do so rather than leave the dirty work to others. Some of the pics are tough to look at...

[Ms. Newkirk included a list of links that I've truncated here for space.]

 . . .

I'll definitely be following up this week to make sure the link/reference has been removed from their Features directing page. EDIT: As of 12PM EST Monday, April 11th, the language has been removed. I can now consider this a complete victory.

We have been heard indeed, from the highest level of PETA.

I'm so incredibly humbled by and proud of this community right now.

More thoughts tomorrow.

A 2nd Open Letter to PETA: Thank You


TO: "Ingrid Newkirk" [IngridN@peta.org]
CC: "Carrie Snider" [CarrieS@peta.org], "HollyAnne Dame" [HollyAnneD@petaf.org], "Tracy Reiman" [TracyR@peta.org], "Dan Mathews" [DanM@peta.org], "Lisa Lange" [LisaL@peta.org]
SUBJECT: A 2nd Open Letter to PETA re: Win a Vasectomy - Thank You
DATE: Sun, Apr 10, 2011 at 2:26 AM


Ingrid E. Newkirk, President
CC: Carrie Snider, Special Projects Coordinator; HollyAnn Dame, Membership Correspondent; Tracy Reiman, Executive Vice President; Dan Mathews, Senior Vice President of Campaigns; Lisa Lange, Senior Vice President of Communications
People for the Ethical Treatment of Animals
501 Front St.
Norfolk, VA 23510

Dear Ms. Newkirk,

It was recently brought to my attention that PETA has removed all links to National Infertility Awareness Week for your “Win a Vasectomy” campaign. On behalf of the 7.3 million people who cope with the disease of infertility every day:

Thank you.

Thank you for listening to our voices, our emails, our blog posts, our tweets, our website comments, our media coverage, our phone calls and messages, and our petition with 2,200+ signatures. Thank you for listening to your members and supporters who disagreed with this campaign’s tactics. Thank you for listening and hearing the voice of the infertility community. Believe me when I say we are deeply grateful for your decision to retract the association between these two campaigns.

Thank you for recognizing and acknowledging that infertility is not a joke, not a patient community who can be used to promote your organization’s aims at our expense.

I have asked my readers and followers to consider making a contribution to their local animal shelter as a way to say thank you to your organization in the wake of your decision to remove the link to NIAW. I personally will be making a contribution to the Northeast Animal Shelter in honor of this occasion, a no-kill shelter in my community that brought us our two lovely cats Saba and Toro (see picture below).

I do have one final, minute request of a technical note. While the landing page for the “Win a Vasectomy” campaign has removed all mention of NIAW, it appears the directing page under the Features tab still includes the “in honor of” language (http://www.peta.org/features/default.aspx). As someone who has worked with website management before, it appears to be a simple oversight error that this language was listed on this separate page. We would appreciate the immediate removal/updating of this language from the Features page as well if PETA would like to be consistent in honoring its commitment not to further offend our patient community.

Again, I would like to personally thank you, and thank you on behalf of the infertility community for removing the link to your campaign and NIAW.

Respectfully,
~Keiko Zoll
(and Saba & Toro)

Thanks, PETA.

April 9, 2011

PETA Update #4: Victory!

We did it, folks!

PETA has removed all references to National Infertility Awareness Week from their "Win a Vasectomy" campaign. I've closed the petition and we've come in at just over 2,200 signatures in just 3 days. This is an incredible victory for the infertility community.

Check out my vlog below for more information, and stay tuned for my open letter to PETA thanking them for hearing our voice and responding to our concerns.



Feel free to spread the good news!

April 7, 2011

PETA Update #3: Close, But No Cigar

It's been a crazy 48 hours. Let's recap:

First I sent PETA my open letter in response to their "Win a Vasectomy" campaign. Then PETA wrote back... and told me to "just adopt." So I wrote them back again (does this officially make us pen pals?) and they wrote me back again with a non-apology apology.

Then PETA issues a broader non-apology apology on their Facebook page that said, in a nutshell: "We're sorry you got so upset."

So then I posted a petition online at Change.org, urging signers to Tell PETA: Infertility Is Not a Joke. And as of 9PM EST today, 1700+ people think that PETA should formally apologize and immediately remove any link between their campaign and National Infertility Awareness Week.

I think this makes me and PETA BFFs now.

Other important things that have happened in the last 48 hours:

If this wasn't already obvious, the momentum on this campaign has picked up like wildfire. So after all this, how does PETA respond?

By changing "in honor of" NIAW to "during" NIAW.

Click to embiggen.

*golf clap*

Don't be fooled, readers. This isn't the victory we've been after just quite.

What would appear to be a real response is actually just a trollish attempt to appease the masses and probably keep their phones from ringing off the hook.

I've got to hand it to PETA: they rank among the likes of Fred Phelps and the Westboro Baptist Church when it comes to walking the line between literal and libel. In sum, I'm honestly impressed at not only how smug PETA is when it comes to engaging with their opposition, but at just how suave their trolling really is. In the battle of David vs. the Goliath, this little blogger is head to head with the pros.

Here's the thing about trolls. They love the attention and the vitriol spewed in the wake of their trolling. They feed on making you angry. That's why apart from this post, I've engaged in nothing but eloquent, well-researched, well-composed dialogue on my end. PETA, for the most part, has done the same, with the exception of telling me that "infertility is justified because the world is overpopulated" and that "as an infertile woman, I should just adopt." In all of my exchanges, I haven't resorted to profanity or name-calling. Believe me: I've been tempted.

But with this little tweak to PETA's campaign website, I'm calling out PETA for what they are: trolls. 

Trolling: an artist's rendition.
I'm not stupid and I know this one campaign has not happened in a vacuum. "Win a Vasectomy" in honor of/during NIAW is not a new tactic; this is merely standard M.O. for these folks. I'm well aware of some of their other controversial campaigns, such as comparing the consumption of meat to the Holocaust. And there's other less overt ways PETA exploits people at the expense of animals: PETA has no problem objectifying women in their ad campaigns.

What's the first rule of the internet? Don't feed the trolls. Here's the thing - I'm confident that PETA went after the infertility community because we're largely silenced; I honestly don't think PETA was expecting a response this vocal. Sometimes you have to feed the trolls - but give them food they don't like, such as solid research and stats, a commitment to no longer contribute to them financially, and mature, well-spoken arguments. If you resort to swearing and name-calling, they've won. You basically have to treat PETA like a small child: speak slowly, clearly, and repeat yourself ad nauseum until they understand. 

By changing "in honor of" to "during" and by issuing apologies that apologize for our reactions and not their actions, PETA is essentially patting us on our heads and hoping we'll go on our merry ways. We can't give in; we have to be relentless. Keep calling and leaving messages. Keep emailing them. Keep sharing the petition with others. Keep tweeting and posting on Facebook. Keep contacting the media (so far only Canada, Ireland and New Zealand have picked up PETA's stunt, but not our response).

If you chip away at a tree long enough, it will eventually fall over. The ball is still in PETA's court to do the right thing, and until then, we need to remind them of that... every day, every hour, every minute.

EDIT: On the flipside, I'd like to recommend Mel's very thoughtful post about this whole fiasco over at Stirrup Queens. It's easy to get caught up in the anger and emotion, but she makes some fantastic points about why this whole thing still matters. It's a nice counterpoint that promotes and encourages thoughtful dialogue about all of this. Check out Why I'm Not Talking about PETA.

April 6, 2011

PETA Responds and They Just Don't Get It

Click here to jump to the list of participating blogs with open letters to PETA.

Seriously? PETA just doesn't have a clue.

I did in fact send my Open Letter to PETA yesterday to Ingrid Newkirk, President of PETA. Color me shocked when I actually received a response from a real-live human being: Ms. Carrie Snider, Special Projects Coordinator for PETA.

Here it is:

FROM: Carrie Snider [CarrieS@peta.org]
TO: Me
DATE: Tue, Apr 5, 2011 at 2:50 PM
SUBJECT: RE: An Open Letter to PETA re: "Win a Vasectomy"
mailed-bypeta.org
Dear Ms. Zoll,
Ms. Newkirk is currently traveling and unable to respond, so I am answering your letter on her behalf.
While we recognize that infertility is a difficult issue for many people, we continue to support adoption of human children and companion animals alike. With nearly 7 billion people on the planet, and a crisis of vanishing resources, it is crucial-- for humans and animals -- that we curb our reproductive habits.
Respectfully,
Carrie Snider
Special Projects Coordinator
People for the Ethical Treatment of Animals


How kind of you to respond, Ms. Snider. Unfortunately, you failed to address about 99% of what I had to say in my original letter. Perhaps I need to clarify:


FROM: Me
TO: Carrie Snider [CarrieS@peta.org]
DATE: Tue, Apr 5, 2011 at 3:40 PM
SUBJECT: Re: An Open Letter to PETA re: "Win a Vasectomy"
mailed-bygmail.com
Good afternoon Ms. Snider,
Thank you for your prompt response; I was fully expecting my email to float into the ether.
While adoption is certainly a wonderful option for many families, it is a family building resolution, not a cure for a prolific global disease. The WHO estimates infertility may impact as many as 1 in 4 women globally. And yet, there are many who believe infertility is not a disease, despite official statements from leading health organizations like the WHO. Your response to me confirms this as you refer to infertility as merely a "difficult issue." There is a level of cultural silencing and shaming around infertility that events like National Infertility Awareness Week seek to combat.
The "Win a Vasectomy" campaign from your organization only compounds the work we have to do to dispel this cultural shaming and exacerbates tired, canned responses to the issue of infertility. Overpopulation as justification fails to respond to a legitimate medical disease and invalidates the emotional and physical experiences of 7.3 million people in the US alone.
Additionally, I should not have to "curb" my reproductive "habits" - for an organization that concerns itself with animals, it seems to be PETA line to only have a rudimentary understanding of basic animal biological imperative. Reproduction is hardly habit; it is animal instinct. For humans, it is both right and privilege.
PETA's campaign misses the mark on so many levels and has left me and hundreds of others who have since read my blog today hurt and disgusted that PETA would stoop as low as to insult and demean a medical patient population as vast as the infertility community.
I hope Ms. Newkirk can find the time to respond, as this campaign is not only a mockery of everything that National Infertility Awareness Week seeks to promote, but is a cruel execution of a kitsch promotional concept at the expense of millions of patients for whom infertility is no laughing matter.


~Keiko Zoll


Again, I honestly didn't think I'd receive a response. Oh that Carrie, she's a fighter! She even pulled the "I'm making this sound like an apology without actually apologizing" card!


FROM: Carrie Snider [CarrieS@peta.org]
TO: Me
DATE: Tue, Apr 5, 2011 at 5:07 PM
SUBJECT: RE: An Open Letter to PETA re: "Win a Vasectomy"
mailed-bypeta.org
Dear Ms. Zoll,
Thank you for sharing your thoughts on this issue. I’m afraid Ms. Newkirk is traveling, but I want you to know that your concerns are heard. I think we both have important points, and I share your concern for the sensitivities of would-be parents. Please know that our intention was not at all to mock, but to push for an overall lower birth rate for all humans and companion animals.
I can see that this is very painful for you and your community, and for that we’re sorry. I hope we can share a vision of a future where a sustainable human and animal population means no need for such a contest.
Sincerely,
Carrie Snider
Special Projects Coordinator
People for the Ethical Treatment of Animals


So... PETA is sorry that this is painful for me and that I've been offended... but they're not sorry for their campaign. They're not sorry for insulting and invalidating the medical conditions of millions of men and women. Their intention was not to mock... and yet they managed to do so in perhaps one of the most insensitive, asinine ways possible. Thanks PETA, for your passive-aggressive non-committal apology without really apologizing.

Well, I guess it's the sorriest response I could have expected.


Stay classy, PETA. Oh wait, this is a concept completely lost on you.


SOLIDARITY: Letters/Posts to PETA 
Openly Condemning the "Win a Vasectomy" Campaign

April 5, 2011

An Open Letter to PETA

Ingrid E. Newkirk, President
People for the Ethical Treatment of Animals
501 Front St.
Norfolk, VA 23510

Dear Ms. Newkirk,

I grew up listening to Bob Barker reminding me to "always spay or neuter your pets" at the end of each episode of The Price is Right. It's a responsible action to take as a pet-owner, something I've done for each of the four cats my husband and I have rescued from shelters over the years. I can support campaigns to promote spay/neuter programs, as it's something all pet-owners really should be doing anyway. Organizations like the ASPCA have even established mobile and transport spay/neuter programs to reach pet-owners in urban communities, an example of a great community-based program to give pet-owners the access they need to spay/neuter care for their animals.

What I can't support, however, is your latest media-sensationalizing-ready "Win a Vasectomy" campaign offering a free vasectomy to a man who has his pet spayed or neutered during the month of April:



It's not that I take issue with offering a vasectomy as a contest prize, rather, that this entire publicity stunt is in honor of National Infertility Awareness Week.

As you so tactfully state:
Human overpopulation is crowding out animal life on the planet, and dog and cat overpopulation is creating a euthanasia crisis that is a crying shame. Disappearing wilderness, vanishing water resources, and pollution is the price that future generations will pay for more human births...
I recognize that PETA has never been a bastion for balanced, non-violent promotion for the ethical treatment of animals. Your "Win a Vasectomy" campaign in honor of a federally recognized health observance, however, takes your subtle PR approaches to an astoundingly new low.

Why has PETA chosen to exclusively recognize National Infertility Awareness Week? By your logic, if we're to curb human overpopulation, we should be more aware of high mortality rates and causes. Why not American Heart Month in February? Why not Breast Cancer Awareness Month in October? After all, heart disease and cancer are the two leading causes of death in the United States. Why not honor those Awareness Months (and thus those leading causes of mortality) by offering assisted suicides for patients who spay and neuter their pets?

Perhaps I've spoken too plainly. Perhaps poking fun at cancer and heart disease patients to promote your cause isn't the best PR strategy. In fact, it would appear that PETA even supports and awards the work of those in the breast cancer research community. You even said so yourself: "Anyone who wants to see a cure for breast cancer in our lifetime should support this forward-thinking program." So I guess finding cures for cancer is something PETA supports, even though you've said publicly: "We are named People for the Ethical Treatment of Animals. There are plenty of other groups that worry about the humans.''

Now that I've had a chance to really process this, I think I've figured it out now: it's not that PETA wants people to die; rather, they shouldn't be born in the first place. And what better way to do this than to celebrate and honor National Infertility Awareness Week by enabling "one lucky man" to be "reproduction-free, free of charge, just like his pooch or feline friend."

I think your meaning is finally crystal-clear to me. PETA has decided that it's acceptable to ridicule, devalue, and trivialize the infertility patient community experience in the name of promoting responsible pet-ownership. By your logic, infertility patients deserve the diagnoses handed to them because we simply shouldn't be having children in the first place. The planet is crowded enough. Our infertility is justified.

It's okay to have a laugh at the expense of the infertility community because they shouldn't be having babies anyway: what a fantastic PETA promotional message. Your "Win a Vasectomy" campaign is tactless, arrogant, hurtful, damaging, insensitive and disgusting.

I guess I'm just a little confused since your organization is focused on the ethical treatment of animals, yet you seem to have a pretty strong opinion worrying about human concerns like overpopulation, or even taking the time to award progressive breast cancer research groups. I mean, you said so yourself- there are plenty of other groups to worry about the humans.

Ms. Newkirk, as someone living "reproduction-free" for the last two years, I can tell you that our patient community experience is not justified nor deserved. While you're offering "one lucky man" the choice to live "reproduction-free," I didn't have that choice. My one remaining ovary stopped functioning and my hopes to ever have my own genetic children were taken away from me without my consent. Overpopulation or not, I still have the right to parent and to seek medical treatment for my infertility. To say that my diagnosis is somehow deserved or justified in the name of population reduction is not only an affront to me personally, but to the 7.3 million other men and women who live with this disease daily in the United States.

RESOLVE, the National Infertility Association and the responsible organization for National Infertility Awareness Week, has dedicated this year's focus to busting infertility myths. Ironically enough, by choosing to honor NIAW with your "Win a Vasectomy" campaign, you've helped to perpetuate many infertility myths in the process. It would behoove you and the members of your organization to perhaps do your homework before initiating such media-ready PR campaigns, but then again, I suppose that was the point.

Unfortunately, even bad press is still press, so I'm hoping my readers will post about their outrage on Facebook linking instead to this post, posts of their own, or the screenshot of the page rather than linking directly to the "Win a Vasectomy" page at PETA. When the success of a publicity campaign is measured in pageviews, it's important that the infertility community keeps your organization from receiving those pageviews in the first place.

It's unfortunate that you launched this campaign at the expense of any kind of financial support from our 7.3 million-strong patient community. I will encourage all of my friends, family, readers, and followers who have previously supported PETA in the past to instead make a donation to RESOLVE in support of National Infertility Awareness Week and ask them to do the same to their family, friends, and readers. I will also encourage them to email you directly at ingridn@peta.org with their outrage over your latest campaign and to share your email address with those who share their concerns.

Perhaps if your organization bothered to treat their fellow humans with respect, dignity, and ethics, more people would do the same for animals.

Signed,
Keiko Zoll
Emailed on April 5, 2011


Are you as pissed off as I am? Here's what you can do:
  1. Email Ingrid Newkirk, PETA President, directly at ingridn@peta.org to express your outrage.
  2. Make a donation to RESOLVE in Ingrid Newkirk's name.
  3. Bust a myth for National Infertility Awareness Week.
  4. Write your own blog post expressing your outrage, tweet about it or Facebook it. Just don't link directly to the page to rob PETA of pageviews. Here's a handy screenshot instead.

April 1, 2011

Infertility Ain't No Joke

It may be April Fool's Day, but infertility ain't no joke.

My favorite meme on the intarwebs right now.

Let's tell it like it is, shall we?

  • Infertility affects 1 out of every 8 couples in the US. Worldwide, the World Health Organization estimates that as of data through 2002, infertility affects as many as 1 in 4 ever-married women of reproductive age in most developing countries (source).
  • Infertility can cause as much stress, anxiety and grief as having been diagnosed with cancer or the loss of a loved one. It's not just a disease; it's a major life crisis (source). 
  • Only 15 states in the US currently mandate insurance coverage for infertility treatments. 
  • Infertility is culturally misunderstood largely due to media bashing, sensationalization, and minsinformation. (Click each link to read more about specific examples.)

As a result, there are a myriad of myths out there surrounding infertility and ultimately, we run into these myths throughout our journeys. Sometimes we can just roll our eyes when we hear them: "Just relax!" Other myths can deeply hurt us: "Infertile people should get the hint and stop being so selfish."

Anyone else feel like they need to clear the air in the room and set some things straight?
. . . 

As I mentioned last week, RESOLVE's National Infertility Awareness Week, starting just 23 days from now. They have an excellent Bloggers Unite project this year: Bust a Myth!

It's kind of like Bust a Move, but with less Young MC.
We know the myths. We hear them all the time. So this year, RESOLVE is asking bloggers to pick a myth from their list or write about their own. Reflect on the myth and then BUST IT in your blog post. Publish your busted myth post between April 24th and 30th, and your blog will be eligible for the Hope Award for Best Blog at RESOLVE's Night of Hope Awards!

To find out more information on how you can participate, check out the Bust a Myth Bloggers Unite project page here.
. . .

I can't be all doom and gloom for April Fool's Day. If you're looking for a laugh about infertility, head on over to Infertile Naomi's 999 Reasons to Laugh at Infertility. Naomi reminds us of something rather important, no matter where we are in our journeys: "Infertility itself is not very funny but when life hands you lemons, make some fertile lemonade!"

March 25, 2011

Infertility and Raising Awareness

We are more than our infertility. 
When we think of infertility, sometimes we think about all the things it has taken away from us: our fertility, our sense of control in our lives and of our bodies, sometimes even our hopes and plans. Infertility can make us weary, stressed, sad, numb, frustrated, jaded, angry, confused, scared, restless... the list goes on. For some, infertility leaves a sense of emptiness inside them. For others, infertility is less a sense of emptiness but more of a constant reminder that shadows them wherever they go.

I have said this on multiple occasions and I'll say it again: we are more than our infertility.

Often, when I speak of my own infertility journey, I start with saying "Infertility has robbed us of the chance to build our family the old-fashioned way." It's true. That chance was in fact stolen from me. Yet it hasn't left me empty, even if at first it felt that way. And I don't feel like infertility is chasing on my heels, a shadow I can't escape, rather, it's colored my vision and the way I look at the world. Infertility has changed me as a person, but I am not defined by my infertility.

I think this is due largely to my involvement with RESOLVE, particularly with advocacy and raising awareness. I've written before that I fit very much the definition of a wounded healer, that from my place of pain I am able to turn around and help others. A lot of this is probably personality but I think a good portion of this is simply part of my healing process. And I won’t lie: it kills the time while we wait to begin our own family building process.

Raising awareness and advocating for infertility treatment, coverage, and research has given me back a lot of the things that felt taken from me. I feel like I’ve regained a sense of control and that I’m engaged in meaningful, purpose-driven work. A couple of weeks ago, I was telling my husband how I was sorry I’m not the same woman he married three years ago. “Infertility has made me a different woman,” I said.

“It’s true. You’ve changed,” he said, without hesitation. I turned to look at him. “But you’re a stronger woman because of it.”

I carried a lot of shame for that first year after my diagnosis. After creating my video for National Infertility Awareness Week last year, it was as if that veil of embarrassment and guilt was lifted from me. I spoke with confidence: “My name is Keiko Zoll, I’m 26 years old, happily married, and living with infertility.” That confidence has only grown and yes, I am a different person – a stronger, more passionate person who’s ready to take on the challenges facing our community and advocate for change.

I know advocacy isn’t for everyone, but I can’t deny how much of a positive impact is has not only made on our journey, but in my life.

There are two ways you can raise awareness and advocate for change coming up in the next two months. One requires very active, direct interactions with legislators while the other can be more passive, from the comfort of your favorite blogging platform.

Less than a month from today, RESOLVE is sponsoring National Infertility Awareness Week 2011, from April 24 – 30th. There are a variety of events happening around the country, and you can host your own event too. Or, if you’d like a more passive approach, check out this year’s Bust a Myth Infertility Blog Challenge. Pick an infertility myth and blog about it – it’s that simple! All entries will then be eligible for RESOLVE Hope Award for Best Blog at their annual Night of Hope Awards.

With all of the misinformation and misunderstanding about infertility out there, this is a perfect opportunity to raise awareness and pave the way for change. You might even use it as an opportunity to “out” yourself to others- daunting and not for everyone, I know – but still a perfect chance to show people how 1 in 8 is not only someone they know, but someone just like you.

If you’re feeling particularly inspired and fired up, you can also participate in RESOLVE’s Advocacy Day on Thursday, May 5th. With RESOLVE’s training and guidance, you can meet with legislators on Capitol Hill to speak about why Congress needs to care about infertility and to legislate wisely when it comes to reproductive healthcare and mandated healthcare coverage. Can’t make it to Washington D.C.? No problem! RESOLVE will help set up appointments for you with legislators in your state and local districts.

I realize how intimidating this might sound, but others just like you have done it (Stirrup Queen, Body Diaries by Lucy, and A Little Pregnant, to name a few) and after the initial jitters, feel exhilarated at having taken such a bold step in infertility advocacy. To quote the ever fabulous Julie over at A Little Pregnant, "I don't really know what to say about Advocacy Day except that I have never had a more empowering moment as an infertile person." How is that not inspiring to get involved?

I’m planning to go to Advocacy Day myself this year for the first time. I can’t make it to D.C., but I can certainly take a day off of work to meet with legislators here in Mass. and thank them for their support and provide them with further education. Honestly, it’s the least I can do for having the privilege to live in state with mandated coverage.

Infertility and raising awareness, advocating for change: it’s good for the soul. It feeds us with passion and purpose. We regain some of that control we’ve lost. We see our infertility less as a limit of who we could have been and more of an opportunity of what we can become and the change we can make in the world. Raising awareness and advocating for change helps to support our infertility brothers and sisters-in-arms.

In the end, we come out stronger because of it.


This post is part of About.com’s Health Channel Fertility Blog Carnival hosted by Rachel Gurevich, author of infertility.about.com.

March 23, 2011

4 Myths Debunked About Mandated Infertility Coverage

As I mentioned last week, Maine could potentially become the sixteenth state to mandate insurers to cover infertility treatments. The bill, LD 720, will be heard before the Joint Committee for Insurance and Financial Services at the Maine State House (room 220) in Augusta at 1pm today. There will be time for brief testimony to be shared with the committee. If you live in Maine and you've got the time- please make it to the State House today. Your support is vital for this bill to gain any continuing momentum in the Maine legislature. Complete details regarding this bill and the public hearing today can be found on RESOLVE of New England's Maine Advocacy Alert page.

Believe me when I say your support is critical; there is already a lot of opposition for this bill. Just ask Anne Beldon, a devoted RNE volunteer up in Maine who sent in an excellent Letter to the Editor of the Bangor Daily News. Some of the reader comments, aside from being quite misinformed, are downright cruel. It is a stark reminder of just how lucky I am to live in Massachusetts, where we lead the nation in mandated coverage.

Some of the biggest complaints from commenters were that they shouldn't have to pay for the lifestyle choices of others and that overpopulation is a global problem, so perhaps infertile people should take the hint. Oh, and have you considered adoption?

*facedesk*

I almost don't know where to begin.

Let's start by addressing four of the myths about mandated infertility coverage we hear all the time (as reflected in the reader comments to Anne's letter) about why infertility treatment shouldn't be covered.

Myth #1: Infertility isn't a disease; it's a lifestyle choice.
Reality: The World Health Organization would beg to differ. The inability to conceive or carry a pregnancy to term is a medical condition, not a choice.

Myth #:2 I shouldn't have to pay for someone's expensive, elective IVF treatment.
Reality: IVF accounts for less than 3% of all infertility treatment, according to the American Society for Reproductive Medicine. ASRM also states that IVF accounts for 0.07% of U.S. health care costs (Source, ASRM). In fact, infertility is a treatable disease, so it makes sense that insurers provide coverage for its treatment.

Myth #3: Providing infertility coverage will drive up everyone's premiums.
Reality: Employers who provide infertility coverage can see as much as $1 per member per month in premium reductions (Source, American Journal of Obstetrics and Gynecology). And take a look at what happened in Massachusetts: infertility expenditures made up less than 1% (0.81%, specifically) of all insurance expenditures in 1986, a year before the mandate was made into law. Less than 10 years after the mandate was in place, infertility expenditures as a percentage of total expenditures actually decreased to nearly haf that number, at 0.41% (Source, Fertility and Sterility, 1998).

Myth #4: The world is overpopulated. Why don't you just adopt?
Reality: The first issue is that you attempt to deflect the issue at hand by making "overpopulation" the focus of your rebuttal; this is commonly known as a straw man argument. But I'll bite and turn this question back to the reader. Why don't you just adopt? Why must adoption fall solely in the arms of the infertile? Instead of having your own biological children and thus contributing to overpopulation as you claim, why not adopt yourself?

5 points to remember when responding to the infertility coverage critics out there:
  1. Educate yourself. People will want sources. (I've provided them all here.)
  2. Don't feed the trolls. They're a hungry lot, and it's easy to fall into their traps.
  3. Pick your battles. You can't win over everyone.
  4. Agree to disagree; like the point above, you can't change all hearts and minds.
  5. Don't lose sight of the bigger picture and keep fighting the fight!
That last one is important. It's easy to get bogged down in trying to respond to every thoughtless, ignorant comment, to try and make each of your comments a teachable moment. In reality, the bigger issue at hand - getting mandated infertility coverage - is the goal. You can't lose sight of the forest for the trees.  Stay tuned for my post about Infertility and Raising Awareness, where you can find out more about how to be your own infertility advocate.

What are some of the comments you've come across, either in person on as a response to a blog post or article, and how did you respond?

March 16, 2011

Possible Infertility Coverage Mandate Coming to Maine

Background photo by Justin Russell via Flickr.
Mainers: I don't want to get your hopes up, but there is some seriously big, exciting news coming to your neck of the woods:

Representative Gary Knight has sponsored a bill that seeks to mandate insurance coverage for infertility patients in the state of Maine. I told you: big, exciting news. You can read the full text of the proposed legislation for LD 720 here. What's particularly awesome? Rep. Knight is a Republican. So is his co-sponsor, Assistant Majority Whip, Rep. Andre E. Cushing III. Gentlemen, I applaud you for bucking an otherwise disturbing trend by some of your Republican colleagues in other states. This is the kind of progressive, supportive legislation we'd like to see more of from your party.

Even bigger news? The Maine legislature has put LD 720 on the hearing docket a week from today. The public hearing is Wednesday, March 23 at 1:00pm in room 220 at the Maine State House. Time will be allotted for brief, personal testimony. If this bill is going to get any kind of support from the rest of the Maine legislature, it is critical that at least 20-30 people show up to this public hearing.

Do you live in Maine? Do you know a Mainer struggling with infertility? Please share this post with them and encourage them to attend and if comfortable, to share their stories with legislators! Sharing your stories of what this kind of insurance coverage could mean to you personally can be the tipping point for an infertility mandate's success. Trust me: it's what won over Massachussetts legislators in 1987 when the infertility mandate was first made into law here. The way has been paved - it's up to Mainers to continue the legacy of 15 other states that have mandated infertility coverage.

Ah, but there's always a catch.

It should be very important to note that there are two controversial provisions within LD 720 as it is currently written:

1. Coverage would only be extended to married couples; and
2. Coverage would be denied if an infertility diagnosis was the result of an STI.

RESOLVE of New England does not fully support the bill as written, however, it is important to build momentum for the bill as it is my understanding that Rep. Knight would seek amendments to the bill to remove these two controversial provisions.

How can you help spread the word and show support for mandated infertility coverage in Maine?
  1. Direct your Mainer friends and bloggers over to this post: Public hearing next week on proposed infertility mandate in Maine
  2. Tweet about the hearing date and time, like this: "Attn Maine: do u want #infertility coverage mandated in ur state? Tell ur legislators on Wed 3/23 at 1pm! Details here: http://exm.nr/hSlPbs"
  3. Do you live in Maine? Can you get to the State House next Wednesday at 1pm? Awesome - do it!
  4. Blog about it, post about it on Facebook - spread the news and share with others!
How awesome would it be if Maine could become the 16th state to mandate coverage? Maine: you could be a part of history.

Let's get crackin' readers and spread the word!