5 Infertility Books for Great Summer Reads: Good Eggs

Welcome back to my Infertility Summer Reading review series! Tune in every other Friday this summer for a new review. Check out the schedule of reviews below. You can even grab your own copy of the books reviewed by clicking the book covers under the Infertility Summer Reading List to the right. Feel free to start reading ahead or wait until after the review goes up. Either way, do join along and share your thoughts in the comment section!

Infertility Summer Reading Series Featured Books

1. Conquering Infertility by Dr. Ali Domar - (Read the review from June 3)
2. Inconceivable by Carolyn and Sean Savage - (Read the review from June 17)
3. Good Eggs: A Memoir by Phoebe Potts (Today's Review: July 1)
4. Silent Sorority by Pamela Mahoney Tsigdinos (July 29)
5. Navigating the Land of If by Melissa Ford (August 12)

Good Eggs: A Memoir by Phoebe Potts

Recommended to me by: Mayyim Hayyim

The Review: It seems like such an unlikely medium for an infertility story, but Good Eggs weaves the story of Phoebe Potts' life in such a unique fashion it's hard not to resist the urge to pick up a copy. I had heard excellent things about this book and when I was at a class on infertility and ritual in the Jewish tradition at Mayyim Hayyim, a progressive mikveh center in Newton, single page prints of her book were on display in a featured art exhibition. They had out copies to peruse and as I waited for the class to begin, I read the first third of the book. I finally bought my own copy and finished it this week in anticipation of today's review.

It's hard to describe this book: yes, it's an infertility story, but it's much more than that. Potts describes her life growing up, her tumultuous and at times strained relationship wit her mother, and her lifelong struggles with debilitating clinical depression. We see very tender and poignant snippets of her courtship and marriage to her husband Jeff as well as a wandering narrative about her brief year in Mexico. Throughout all of this is their quest to conceive.

Potts illustrates the painful reality of unexplained infertility. By all accounts, she and her husband are perfectly normal. Yet after timed intercourse, several failed IUIs and IVF cycles, they still don't have any luck. The uniqueness of the graphic novel format allows us to literally see her thought bubbles in the very moment of each scene. As readers, we become witness to a continous running inner monologue in a way that traditional autobiographic narrative fails to provide.

Good Eggs is a much a resource for those coping with mental illness as it is for those dealing with infertility. Potts' frank portrayal of The Voice - her monstrous, self-deprecating inner monologue - is perhaps one of the most vivid and honestly accurate depictions of what it's like to live with depression.

Potts also shares the way in which her Jewish faith has been impacted by her infertility, as both a conflict of faith as she sits during High Holiday services and listens to the story of Hannah, and as inspiration as she considers becoming a rabbi. I was left feeling like the word "exploration" was the theme of her story as she seeks to discover herself and what fulfills and sustains her.

While I try not to post spoilers, I will say this: the book does not end with a nice, neat ribbon on it, all tied together in a "another infertile couple success story" bow. Potts's journey remains unresolved. However, she leaves the door open for what the possibilities for parenthood could be. This ending really resonated with me because it's a narrative ending you don't often see - that lingering, unresolved ending that leaves you deeply investing and thinking about Phoebe and Jeff well after you finish the book.

Potts' illustrations are quirky and even whimsical at some points, with much detail crammed into each panel. I found it interesting that I most quickly identified characters by their hair, as Potts draws their hairstyles with such distinct detail. Good Eggs is rife with a rich story and characters but at times the narrative feels wandering and clumsy. While flashbacks in the storyline were generally introduced, we are suddenly snapped back to the present storyline in an abrupt and sometimes very confusing fashion.

I would have also appreciated just a smidgen larger book size. While 9x6 is a pretty standard book size, Potts' illustrations are so detailed that sometimes it's hard to spot the little hidden gems in each panel, such as witty puns (a box of tissues labeled Tish B'av, a Jewish holiday of mourning) or running gags (her cat's appearance in many panels included a running commentary of its thoughts). And with little visual footnotes and descriptions tightly packed into each frame, the size of the book made them difficult to read at times.

Quotable Moment: After multiple failed IUIs, Phoebe begins to confront the possibility that things may not work out. In a full page panel, Phoebe sobs in her husband's arms as he holds her and says, "Oh, sweetie. It's going to be OK. We're going to have a baby." Woven throughout the panel is the following:

"It's in Jeff's job description to say the things I need to hear even if they are not true when the alternative is just too hard to take."

Rating: (out of a possible 5 tasty pomegranates)
Good Eggs presents the infertility experience in a truly unique medium, giving very literal insight and emotion to very intimate moments along their journey. Despite an awkward narrative and panels almost over-drawn in their detail, Good Eggs makes the brave choice to tell an unfinished story and in the process, still leaves the reader feeling hopeful.

Food for Further Thought: Last year, Potts and I were featured together in an article for Tablet Mag, an online Jewish magazine. (Read Breeding Ground here.) We both spoke about how we channeled our infertility struggles into artistic creations: Potts with her graphic novel, me with my What IF video.

Graphic novels have been fighting their way onto the literary scene as early as the 1980s with Alan Moore's Watchmen. In fact, much controversy surrounded Watchmen when it was awarded the Hugo Award in 1988; sci-fi authors critics were up in arms that a "comic book" won perhaps one of the highest honors in the sci-fi genre. Other graphic novels like Art Spiegelman's Maus: A Survivor's Tale, depicting his father's life as a Holocaust survivor, have gone on to win the Pulitizer Prize. Then there is Marjane Satrapi's autobiographical work, Persepolis, which went on to be made into an Oscar-nominated animated film.

Good Eggs has been nominated as Best Book for RESOLVE's Hope Awards this year. Given it's non-traditional medium, do you think it deserves recognition as best "book?" Do you think graphic novels should rank up there with the classics, modern and old? And do you think a graphic novel is an effective way to tell the infertility story?

Have you read Good Eggs? Krissi over at Stress Free Infertility has and just reviewed it this week too. What did you think?

Have you voted for Good Eggs as RESOLVE's Best Book? And have you voted for Best Blog yet?  

Sound off in the comments and have a fantastic holiday weekend for those of you celebrating the 4th in the States. Be safe folks!

5 Infertility Books for Great Summer Reads: Inconceivable

Welcome back to my Infertility Summer Reading review series! Tune in every other Friday this summer for a new review. Two weeks ago I reviewed Dr. Domar's Conquering Infertility. This week I review the truly remarkable story of Carolyn and Sean Savage in their memoir, Inconceivable. Want to join along in the reading fun this summer? Check out the schedule of reviews below. You can even grab your own copy of the books reviewed by clicking the book covers under the Infertility Summer Reading List to the right. Feel free to start reading ahead or wait until after the review goes up. Either way, do join along and share your thoughts in the comment section!

Infertility Summer Reading Series Featured Books

1. Conquering Infertility by Dr. Ali Domar - (Read the review from June 3)
2. Inconceivable by Carolyn and Sean Savage - (Today: June 17)
3. Good Eggs: A Memoir by Phoebe Potts (Read the review from July 1)
4. Silent Sorority by Pamela Mahoney Tsigdinos (July 29)
5. Navigating the Land of If by Melissa Ford (August 12)

Inconceivable: A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift by Carolyn and Sean Savage

Recommended to me by: Terri Davidson, Davidson Communications

The Review: The story begins like so many other stories in the infertility community: a couple thaws their frozen embryo, it's implanted, and whether by luck or blessing, it sticks. But for Carolyn and Sean Savage, their story and world were turned completely upside-down within this otherwise simple narrative. On February 16, 2009, the Savages learned that Carolyn was pregnant with another couple's frozen embryo. The child she was carrying was genetically - and legally - not theirs. In that moment, they made the ultimate decision to carry the pregnancy to term, and at the risk of Carolyn's health no less. Upon delivery, the Savages would relinquish the child to his genetic parents, Shannon and Paul Morell.

The story moves at an incredibly fast pace although it's obvious from the Savages where their nine months seemed endless for them. Carolyn and Sean's journey is fraught with intense emotion; Carolyn struggles with the sense of connection and longing she feels to her biological son, knowing legal relinquishment can never sever the unique bond she shares with him. Sean meanwhile operates in full-protector-mode, trying to stay focused on what is ultimately best for his wife. When a previous pregnancy nearly killed her, he carries a heightened sense of protection for her knowing that she's potentially risking her life for another couple's child.

The Savages and the Morells initially make contact through letters via their lawyers. The chapter where the Savages read that first letter of contact is just so jarring in its anger and disappointment. There's so much that was left unsaid that the Savages so desperately wanted to hear from the Morells. I get the impression in reading the book that a lot of those sentiments they so longed to hear never were said during the course of their journey. It's not that the Morells were ungrateful, but they certainly could have been more sensitive.

As devout Catholics, they faced criticism from their Diocese instead of support, as the Church condemns the use of IVF. The Savages argue that on the day they found out Carolyn was pregnant with someone else's child, they made the ultimate decision to choose life, a greater principle in their eyes than whether or not they used IVF in the first place. Inconceivable is as much a story about a spiritual crisis and journey of faith as it is anything else. (Sean Savage wrote an amazing piece in May further expanding on how the Church reacted to their story for CNN and is worth a read - My Take: Catholic Church should reverse opposition to in vitro fertilization.)

While you always know the inevitable end to the story is coming - as the Savages did too - you're just not prepared for the emotion. From Chapter 18 on, you better have a box of tissues handy. As the story built with such an unresolved sense of closure for the Savages concludes, they share their considerable emotional toil beyond just Logan's birth. I won't spoil it here, but there was a chapter to the Savage's story that was largely unpublicized by the media that adds a considerable layer of depth, emotion, and heartbreak in the face of everything else.

Inconceivable concludes with some of the legal matters as the Savages pursued the clinic that initially made the mistake, detailing exactly how such a life-altering error could happen in the first place. It is both shocking and infuriating as you read how events unfolded and the carelessness that went unchecked at multiple stages in the days leading up to Carolyn's transfer. Inconceivable is a gripping story right to the very last page.

Quotable Moment: Sean describes the moments after Logan was born and before he was given to the Morells with painful clarity and sums up the enormity of their story:

"As Carolyn held Logan to her chest, I could barely contain my emotion. Fifteen hours before, she had held him inside her, now she was holding him on her chest, and a few hours from now he would be gone with the Morells in Michigan. How would we pack a lifetime of love for this child into a few minutes?"

Rating: (out of a possible 5 tasty pomegranates)
The book arrived at my house at 2:25pm. I had finished reading it by 5:51pm that same day: I literally could not put it down. The book is well worth every single pomegranate it has earned. A compelling story of extraordinary circumstances, the Savages tell their story with candid, raw emotion. Inconceivable teaches us about the life-changing impact of a single mistake, the enormous hearts of two devoted parents, and how to cope when confronting the inconceivable choices we may face in our own lives.

Food for Further Thought: There are two sides to every story. Shannon and Paul Morell wrote their own version of events in their book, Misconception: One Couple's Journey from Embryo Mix-Up to Miracle Baby. I won't say the Savages were unkind to Morells in their version of the story, but Carolyn's recurrent disappointment and even outright anger were more than palpable in their book. The Morells have this to say in the introduction of their book, released nearly a year before the Savages' book:

"So why would two very private people expose their personal health information to the public and write a book about how their baby ended up inside another woman's womb? Because through our ordeal we have discovered so many misconceptions...

So though we are not at all comfortable in the spotlight, since we find ourselves here, we do not want our pain or experience to be wasted or our joys and gratitude to go uncelebrated. It is our hope and prayer then telling our story many misconceptions can be cleared away, leaving nothing but the truth."

In some ways, I feel like even in their very introduction, the Savages' portrayal of the Morells doesn't seem that far off. To be fair, I haven't read Misconception, but I won't lie - I don't feel terribly inspired to read their story have read the Savages' first and from skimming what pages are available through Simon and Schuster's website.

Have you read Inconceivable or Misconception? Did you follow the Savages' story last year? What part of their story shocked you the most? And don't forget to tune in again in two weeks when I review the wildly popular graphic novel, Good Eggs by Phoebe Potts.

Thoughts On Choosing the Donor Egg Path

Photo by Frank Monnerjahn via Flickr

IVF with donor egg is a tough concept to wrap your brain around; I certainly struggled with it initially. We've certainly flip-flopped around in our family building plans in the two years since I was diagnosed: donor egg, adoption, then back to donor egg. I have RESOLVE of New England to thank for that; we went to the 2009 Annual Family Building Options Conference and came out thinking donor egg. Then we went to their Adoption Decision-Making Seminar and came out thinking adoption. After volunteering at last year's Annual Conference, we're back on the path to donor egg. Like I've mentioned in our latest snapshot of our infertility journey, the only thing holding us up is getting our finances saved up for the adventure.

Despite all the flip-flopping on the mechanics of building our family, Saturday certainly solidified the decision for us and for the first time, saving up the money be damned, I'm actually really excited about the prospect of donor egg. On Saturday, RNE hosted their Donor Egg Decision-Making Seminar; since I'm on the Board, I got to host the event: set up the room, make sure the presenters are set, sign in and register attendees. Did I deliberately volunteer to host one of our programs that just so happens to be right up my interest alley? Why, I don't know what you're talking about!

I brought my laptop with me and tweeted a lot of the key points and information throughout the day. (You can see the summary of all the #RNEDESeminar tweets here.) It was a nice way to be able to not only jot down notes for myself, but to share them with folks as they were around on Twitter Saturday. Despite all of the research Larry and I have done regarding donor egg, there's always something new to learn, and I certainly picked up a few interesting facts, such as...

Did you know different sects of the same religion have different views on donor egg? For example, if you're a Sunni Muslim, donor egg is forbidden; if you're a Shiite Muslim, it is permitted. Of course my ears perked up when the presenter talked about Judaism: the halacha is a bit fuzzy on the whole issue of donor egg, so really, it's whatever your Rabbi says. Ha! Like I have a Rabbi right now; we still need to find a shul to call our own. (PS: live in MA? Know of a nice Reconstructionist Temple w/in the Boston/North Shore area? Email me.)

That said, I learned a lot and was thrilled to connect with the other attendees; we had 14 total (7 couples) and it was refreshing to connect and talk with folks in person. I'm actually seriously considering starting my own peer-led support group in the North Shore region; meeting other people who really understand the infertility experience is so therapeutic. I'm hardly a healed woman myself; I've come a long way, yes, but I still need the support on a regular basis. I was also shocked that 2 other women there had POF diagnoses, as well as one of the panelist speakers at the end of the day. We're such a small lot that I was glad I could meet other POF-ers in person. ("Glad" of course is a relative term: no woman should ever have to go through POF.)

I wanted to share just a few highlights from the day. The Donor Egg Seminar was structured into five sessions throughout the entire day and I'll just share a few gems from each one:

From Preparing the Way for Egg Donation
Dr. John Petrozza, Chief, Reproductive Medicine and IVF, and Joan Eilers, RN, MGH Fertility Center

• IVF with donor egg has around a 55% success rate nationally which is slightly higher than "regular" IVF (that is, trying to use your own eggs). While success rates vary by clinic, select a clinic that feels like the right fit for you: consider doctor/patient dynamic, nurse and office staff, timeliness of response, etc.
• The ASRM guidelines for donor compensation suggest a minimum donor fee of $5,000 but anything above that should be justified (which is a debatable term right now). The ASRM considers a donor compensation fee above $10,000 to be exorbitant. 
• Donor egg recipients have it a lot easier than normal IVF patients. The prep is in telling the ovaries "Hey! Don't do anything!" and that's typically accomplished with birth control pills. Some recipients may complete a mock cycle: it's a dry run just to see how the recipient responds to meds; this is typically reserved for patients who have never completed IVF before and is usually done concurrently while the donor get screened, to save time.

From Legal Issues and Contracts
Amy Demma, Esq, Law Office of Amy Demma

• Reproductive lawyers are a small, niche group in this country but are extremely well-versed in the intricacies of navigating the legality and ethics of assisted reproductive technology. It's in your best interest to seek out a specialist this this area of law rather than say, your real estate lawyer.
• Did you know about the Donor Sibling Registry? When working with a lawyer, you can include this in your contract with the donor requiring her to register. It's a valuable tool and resource for intended parents and donors.
• While not required, it's good practice to have your lawyer review your Service Agreement with your chosen donor agency. When in doubt, just remember: it's for your benefit and legal protection to have that set of expert eyes looking over any contracts before you sign.

From Finding a Donor
Sheryl Steinberg, Senior Case Manager, Fertility Source Companies: The Donor SOURCE

• Donors are typically young women in their early to mid-twenties. They come from all races, religious backgrounds, marital status, and may or may not have already had children.
• While you can't obtain full medical records of potential donors, they are expected to complete a detailed medical history and comprehensive diagnostic screening.

From Psychosocial Issues
Laura Lubetsky, LICSW, Brigham and Women's Hospital Center for Infertility and Reproductive Surgery

• Selecting your donor: looking through profiles and their pictures - is a weird experience, like you're going through Match.com. It's perfectly normal to feel weird about the whole thing; it's also perfectly normal for there to be feelings of guilt, anger, and grief.
• If you're using a known donor, particularly a family member like a sister, consider the Thanksgiving Dinner scenario. What will the dynamic be like with you, your sister, and your donor egg conceived child at the table? How will define your roles? How weird will it feel? Will it feel weird at all?
• While disclosure is almost always a good practice, it really is nobody's business how you got pregnant.
• The idea of how to tell your children they were conceived with donor egg can seem particularly daunting  to intended parents. Typically, after you have your child and once you're parenting, the idea doesn't seem so foreign and there are a variety of resources out there to help you begin that dialogue with your child.

From A Group Discussion About the Issues—Recipient Parents Speak
Annie Geoghegan, LICSW, Brigham and Women's Hospital Center for Infertility and Reproductive Surgery

• One couple on the panel talked about the very broad way of how they plan to tell their daughter she was conceived by donor egg: "You weren't an oops baby. In fact, your daddy and I couldn't have wanted you more."
• "Everyone comes to the moment they pick their donor differently, but when you do, something just clicks. Selecting a donor can become a very philosophical process."
• "Your emotions can change so much during the whole donor egg process. Just try to take it a day at a time."
• "The moment that baby is in your arms, all those concerns about using donor egg totally shift. You have to stomach this weird process to get to this wonderful end."

On a very personal note, this was perhaps the most emotional and valuable session of the entire day. I left feeling so filled with hope to hear success stories from parents via donor egg. I think the one piece of information that stuck with me, as I drove on a long quiet drive by myself back home afterward. Right now, even though donor egg and IVF and clinics and costs and how are we ever going to tell our children are so ever present on our minds, things totally change and all this worry-filled head space starts to feel more and more distant. The moderator for the panel discussion put it best: if you successfully resolve with donor egg, it stops being the headline. It becomes a badge you wear instead.

I like that. A headline implies that the whole world is looking at you with a judgmental lens; a badge is something we've worked hard to earn and is something of which we can be proud.

I can't wait and I hope I'm lucky enough to earn mine soon.

WBZTV News: Infertility Doesn't Just Affect Older Women

Check it out! Here's the news piece from WBZ-TV, Boston's CBS news station, on our story of infertility and how my younger age plays a factor. Reporter Christina Hager has put together a really compassionate piece and I'm so honored and grateful that she reached out to me for her story.

You can read the story here online - Infertility doesn't just affect older women; or just hit play below. The video runs just over two and a half minutes long. (If it doesn't load, just click the link to the story above and scroll down for the video on WBZ-TV's website.)

• If you're visiting my blog from the news piece: welcome! You can get a brief overview of our infertility journey here. I'm happy to talk with folks so don't hesitate to contact me via email (see my Media page above).
• Correction: Larry and I need to save up $18,000 to begin IVF treatment with donor egg, not $1800, as is mentioned in the piece. Looks like they left off a zero.
• The piece ended mentioning the Family Act, an infertility tax credit bill. You can find out more about the infertility tax credit here - and how you can help by contacting your Senators to ask for their co-sponsorship of this important legislation.
• Please feel free to share this news story on your own blogs, FB, and Twitter. Here's a bit.ly link for your convenience: http://cbsloc.al/isZYC3 

Thanks for tuning in and thank you Christina and WBZ-TV for helping to raise awareness for an important public health issue!

A Snapshot of Our Infertility Journey Thus Far

Photo by Tim Regan, via Flickr.

So often I'm writing about all the big picture things in the infertility world: advocacy efforts, ranting about the media, and the like - sometimes I forget to remember that ultimately, I started this blog to chronicle our personal journey through infertility. I thought I should take a step back from all of that other stuff - though quite important - to just take a look at where we are right now.

Back before we ever knew about my diagnosis, Larry and I had talked over the Big Discussion of When We'd Have Children and decided that May 2011 would be the month we ditch the birth control and start makin' babies. How idealistic we were. It's bittersweet to know that now I can't ditch the BC if I wanted to; it serves as vital hormone replacement therapy. And, despite my best efforts to be sloppy with taking BC, I couldn't make an "accident" happen no matter how hard I tried. And believe me: I've tried this past year. What can I say: I've got a busted ovary and wishful thinking is hardly going to jumpstart it again anytime soon.

It's hard knowing this was supposed to be the month we made love with reckless abandon in hopes for a baby by our fourth wedding anniversary. It's hard knowing that my body has conspired against us. And, like every spring, it's hard feeling like the last kid picked for the team when all I see on my Facebook, Twitter, and Reader feeds are pregnancy and birth announcements, many from within this community. I am of course, happy for each and every one of them.

If you're an infertile blogger, then you know what that bittersweetness feels like: joy tinged with the faintest jealousy. You know that as happy as you are in your heart, it doesn't stop your nearly instinctual reaction to start crying, wondering, "When will it be my turn?"

Once again, I'm on the hunt to find newer blogs of folks who haven't yet resolved; I still read the folks who are moving on, but I'm finding myself in fewer alike company. When I started blogging two years ago, I watched that first batch of fellow bloggers resolve. There have been many batches of bloggers since. And I just keep writing, keeping filling this very aching void in my womb with inspired words.

What I can't create in biology I create in writing instead.

I wonder how many words I will have written before I'm able to write That Happy Ending. That Happy Ending That We Thought We'd Get to Have It All Just Like in The Movies - you know - The One Where You Marry Your High School Sweetheart and Have Your Little Soulmate Babies Together.

Our new adjusted timeline is to hopefully select a donor sometime late fall of this year, to pursue IVF with donor egg. My second opinion doc, Doc Awesome, assures me I'll be an excellent candidate for DE/IVF. Once we select a donor and go through that whole legal and donor screening rigamaroll, hopefully we'll get this baby-makin' ball rolling by December or January at the latest. And... it's only May. It's good to have a timeline in sight, but damn if the waiting doesn't get to me.

This all of course, depends on how quickly we can make our $15,000 savings goal. Believe me, I'm thankful to live in a state with the best mandated infertility treatment coverage, but of couse, donor egg is full of loopholes. Donor compensation, donor screening, agency and legal fees aren't covered, so even with my awesome mandated insurance, we're still facing $15K out of pocket. I know I should be thankful - it's remarkably less than those who have no insurance coverage, but we're not exactly Bill and Melinda Gates here. We're doing our best to pay our mortgage, our bills, fill up our gas tanks and our bellies and still somehow put some cash aside so we can build our family.

And then there's that nagging little voice: "We're actually saving $15K for a chance to build our family."

Because like everything else in this infertility journey: there's just no guarantee.

So that's where we're at: in a financial holding pattern until we save up the money. I continue to be involved with RESOLVE and RESOLVE of New England. I advocate for infertility awareness because it helps pass the time and gives me a sense of purpose and control while I wait. And the world moves ahead of us, another pregnancy announcement at a time.

I keep praying for a miracle.

As the days tick off the rest of this month, as I approach my 29th birthday next week, I keep thinking about How It Was Supposed to Have Been and How It's Very Much Not That at All Now.

And we keep waiting.

A second opinion on everything, really.

Doc Awesome: Artist's rendition.

My second opinion appointment went really well yesterday. The staff at the clinic were very professional and rather friendly. I tweeted from the office that the patients sitting in the waiting room, however, looked a bit somber, but I can't blame them. It just made the contrast between the friendliness of the staff that much more apparent.

Dr. "I have an incredibly awesome/sexy South African accent" who I suppose I should just shorten to Doc Awesome was equally as warm and friendly. (I would've called him Dr. Sexy, but that's reserved for our vet: a post for another day.) I came armed with my list of a dozen questions and a folder full of test results. What astounded me was that I didn't have to sit and give my schpiel (menarch at 9, PCOS Dx at 18, ovary out the same year, thyroid problems at 20, POF/Hashi's at 26 blah blah blah)... he had actually read my file prior to my appointment and was able to give me my own summary back to me.

I find this astounding because with Dr. G, I could count on at least 20 minutes of repeat dialogue at every appointment, including having to go through my medical history at nearly every other appointment. Egads, a doctor that does his homework?? What is the world coming to?

Doc Awesome let me ask my myriad questions and many of the answers were ones that I had expected. Based on my various hormonal tests throughout the last year, it's POF. And like any POF-er, it's entirely possible to experience spontaneous ovarian function and even become pregnant, but that occurs in about 1% or less of the POF population. Bummer.

That being said, Doc Awesome said I'm a fantastic candidate for donor egg, and that POF-er's in general usually are great candidates for DE/IVF. Doc Awesome also oversees all of the donor cycles at this clinic, so I'm in capable hands. They run pretty aggressive treatments for donors and say they get as many as 20 eggs in one shot. Their success rates are also well into the 50-60% range with DE. I asked if my Hashi's could play in a role in the success of DE/IVF and he said that so long as it's maintained, it's a non-issue.

As far at the actual cycle itself, once we pick a donor and she is screened (and the screening process at this clinic is intimidating bordering on absurd- his words, not mine), I'd stop taking my birth control pills and switch to estrogen only. Meanwhile, she'd go on a stim protocol and trigger. The day of retrieval, Larry obviously has to do his thing in a cup, I'll add progesterone gel (sounds goo-tastic!), and the eggs are retrieved from the donor. Depending on how Larry's army looks, we'll either let them do the rumba in the petri dish or directly inject his sperm into the egg via ICSI. About 4 days later, I would come in for a 10 minute procedure to insert either 1 or 2 embryos into my lady parts... and then, voila, the 2ww. Should I choose, I can also add an hour of acupuncture/pressure before and about 45 minutes of the same after the transfer. All told, apart from the actual transfer and using donor gametes, it's par-for-par hormonally and experientially as any other woman experiencing pregnancy.

I mean, I wouldn't even get the giganto box o' needles from the fertility pharmacy. I could avoid needles.

This is huge for me folks. Huge.

All told, we're looking at about $15-17K when you factor in donor agency fees, donor fees, legal feels, and donor screening. (It seems silly that insurance wouldn't cover donor screening, since they are medical procedures, but apparently it's the one medical part of the process they don't cover, which can run anywhere from $2-4K.)

I'm not going to lie: this is WAY cheaper and potentially faster than adoption. And given my age, my other relative health, there's a good chance of this working on the first shot. I know DE/IVF is no guarantee, but even Larry brought up the point: if it didn't work, we would potentially still have other embryos on ice to work with again, given the aggressive retrieval protocol they run on donors.

And you know what? I do want to experience pregnancy and birth. I have resolved that I'll still be just as much of a woman and mother if I don't, but the pregnancy experience is still important to me after all. There's also a good bit of halachic vaguery about the Jewish status of a child born via donor egg, so believe it or not, according to Jewish law, donor egg is easier to navigate that adoption. I wouldn't necessarily need a Jewish donor if pursuing DE/IVF, but absolutely would need a Jewish birthmother if pursuing adoption, domestic or international.

After talking the appointment through with Larry yesterday, I think we're changing our minds... again. Once we save up the money, we're going to go for DE/IVF. I don't think adoption is off the table for us completely, but just not as our first shot.


In sum: Doc Awesome is pretty awesome. (He even complimented me for coming in armed with all of my info noting that I was "a lot more researched than the average patient, which is a great thing.") And when we're ready to go for donor egg... we'll be going with him. I feel really confident in his ability and he has a wonderful candor and sense of professionalism.

So yeah, there you have it. Donor egg is back on the table... and I'm really excited about it. The timeline all depends on how quickly we can hide away the cash, but I think we could probably do this by the end of next year.

I suppose I should start working on a new blog header image this weekend!

Infertility's ethical dilemma.

Tomorrow I have my second opinion appointment. I've filled out all of my pre-appointment paperwork. Larry has filled out all of his pre-appointment paperwork. I have a 1-inch thick file of all of my bloodwork results in the last year and a half, and two handy Excel spreadsheets summarizing my thryoid workups and female hormonal workups. I am ready to go. And well... I'm a little nervous.

Anytime I open myself up to more diagnostics, more testing, I always worry that I'm opening myeslf up for something worse. What if it was never POF all along and instead it was... pancakes? Or dumptrucks? Or... *gasp* Sunday coupons?! (I'm replacing all of the other horrible things a gal could be diagnosed with less severe things as I'm superstitious to ever name actual horrible conditions, like, if I write it here, I'm jinxing myself).

I'm 99% sure I'm going to receive the same diagnosis of POF; my FSH hasn't really dipped below 50 and was at its highest, around 67 I think. I'm not so much looking for a second opinion on the diagnosis as I'm looking for a) a more competent doctor, because as I talked to many folks at the conference this weekend, Dr. G is bad news and b) the slim chance that maybe, just maybe, we could build our family without the use of donor eggs or heading straight to adoption.

Which lead's me to infertility's ethical dilemma... what if I pass on my infertility to my children?

Here's the thing: if I were to do IVF with my own eggs (which, as far as I know based on one opinion, this isn't possible), it would probably save us anywhere from $5-$7K out of pocket (potentially more with agency fees on top of that). I'm lucky because my insurance would cover all my medical costs as well as the donor's medical costs, but I'd still have to pay for all the donor compensation for her time and travel, essentially, the donor fees. Also, insurance (of course) will not pay for legal fees as donor egg use requires the use of a laywer to negotiate the legality of the future child, as in, who's child is this legally. So if I were to use my own eggs, I wouldn't have to worry about paying for anything out of pocket other than office visit and prescription co-pays.

Not only would using my own eggs be cheaper, but I'd get to live that dream of making a baby that's party me, part my husband. But if I do use my own eggs, I could very well pass down my infertility to my potential children.

Would my future child resent me for it later if and when they try to conceive and they ran into issues? I realize that I don't resent my parents for giving me a predisposition for diabetes and heart disease, but if I knew that my parents had a choice in the matter... well, I don't know then. I mean, I'd rather be the person that I am, future potential medical issues or not, rather than not existing at all (as who I am genetically) because my parents used donor gametes. Maybe I'd be able to have a closer relationship with my child, instead of them pushing me away, because Mom and Dad would understand, and we'd be able to share resources with them.

And it's all a gamble anyway... what if we used donor gametes and our future child still had infertility issues later in life? What then?

What if, what if, what if... it's so easy to start formulating endless possibilities and scenarios, like a flowchart of doom branching menacingly into the future. But this is a valid question with which I really struggle: what if I gave this G-d awful, terrible, heartbreaking, tragic disease to my own child?

All just for the sake of being able to say that this child is half-Keiko and half-Larry?

Is it worth it?

. . .

I know there's no answer to that question, and I don't know if any of us could answer that question. But I have to be honest: it doesn't feel rhetorical.

And it doesn't feel ethical. But I suppose, barring genetic testing and selective reduction, there's not a whole lot I can do. And even those options feel icky and just not the best decisions either.

This is infertility's evil Catch-22.

. . .

And this is all on the assumption that I could ever conceive a child with my own eggs. The odds are stacked against me, no matter what doctor I see. So it's all just a waiting game: arming myself with a long list of questions for the doctor tomorrow, and hoping to finally get some encouraging news for once in this journey.

RESOLVE of New England Annual Conference Live Blog!

I'm blogging live today from the RESOLVE of New England Annual Conference in Marlborough, MA. Stay tuned for updates throughout the day - make sure to hit F5/Refresh! Newest updates at the top of this post.

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5:15pm - Alrighty, we're out. Full recap post tomorrow. Thanks for following along for this live blog!

5:08pm - Wow. What a day. Just waiting for Larry to come back with his Room Monitor Sheet from the For Men Only Ask the Expert Session.

4:27pm - Helping to tally up the Room Monitor sheets... so far, the morning sessions were really well attended! Great to see folks dropping off evals on their way out, but I hope folks are heading to the Ask the Experts sessions! It's nice to sit at the main table and answer questions for folks. Also? If I haven't mentioned this already? Everyone is super friendly- presenters, exhibitors, volunteers, and attendees. A very safe space indeed for folks at every stage of their journey. Hm, probably should have mentioned that at the beginning of the day :)

4:00pm - Talking about known donors: there's not a lot written about it right now, and that's an indicator of how well they work. All in all, this is a really great session. Have to scoot... I'm working as the Room Monitor Captain for the Ask the Experts Panels at 4:20pm!

3:53pm - Amazing analogy that cracked up the group re: explaining conception to young children -  Conception equals three ingredients: ovum, sperm, uterus. PB&J sandwiches equals three ingredients: PB, J, and bread. If you're out of PB, you don't replace it with mustard because it's the same color. So, kids as young as 4 and 5 can begin to understand the basics of using donor gametes in their conception. Fair enough. Now I want a PB&J sandwich.

3:50pm - Nancy raises an excellent point about revealing donor gamete status. We must ask ourselves: "This is my child's information. If I share this information with others, will it help or hurt my child?" Ultimately, it all comes back to your child.

3:48pm - Members of the audience agree: sharing your stories with others is a good thing. The panelists talk about creating A and B teams - who are the people who can truly support you, and you might find that one person can shift from A to B, based on life circumstances. Your best girlfriend who is your strongest A team member becomes pregnant, and now you can't relate on the same way. She moves to the B team, but she's still your support, just in a more removed way. It's nice to hear other people share that when they've opened up to others they've gotten a flood of support.

3:41pm - Best statement of the conference, from the male panelist: "There's a lot of ways you can cope, but the one thing you learn through these opportunities is, you are not alone." Good lord is that true. That folks, is why I'm blogging and advocating and volunteering. We are not alone.

3:34pm - Lynn: The whole process feels very overwhelming at the start and you're just freshmen now, but you'll be sophomores soon. It'll all make sense soon. The first panelist makes a great counterpoint: it's okay if you're not able to get to that stage, or not able to be comfortable about going to that next step. Refreshing viewpoint!

3:28pm - Nancy: "Parenting is really flying by the seat of your pants." Totally rings of Melissa's keynote speech from this morning about "Just wing it."

3:22pm - Amazing statement from the previous panelist's husband: after 2 failed IVFs, they looked at their doctor and asked, "Why should we do this?" Their doctor's response: "Because one of those eggs could be your baby." And one of those eggs became their daughter. He also spoke beautifully about how much he wanted to see his wife pregnant, to spoon in the middle of the night, feel that big round belly and feel the baby move. "There's nothing like that in the world." First of all, totally never expected to hear this from a guy, so well said. Secondly - wow. Just... wow. It's so relieving to hear someone else express the desire to be a part of that pregnancy experience, as either mother or father. Just beautiful and really moving - lots of sniffles behind me in the audience.

3:13pm - Another panelist shares the very painful recollection of when her RE told her that she was not a candidate for IVF because of her age, despite being otherwise healthy. "It was a long process to try to work through that." She discusses weighing adoption vs. egg donation and went through the loss. Ultimately, the decision for egg donor won because experiencing the pregnancy was important to she and her husband, as well as having control over the health of the child as opposed to the lack of control over maternal health via adoption. Man, this is really stirring up some emotions for me. I hate the idea of feeling selfish for wanting to experience pregnancy.

3:08pm - Awesome comment from one of the parent panelists: when she was telling her 11 year old son that she was speaking at the conference today about donor egg and donor sperm, he told her: "You should bring me in as an example, mom!"

3:05pm - Nancy Docktor and Lynn Nichols, both consultants (private practice and BostonIVF respectively) open things up with our panel of parents who have been through donor gametes.

2:59pm - Waiting for Donor Egg & Donor Sperm: Asking the Tough Questions to begin. Interestingly enough, after talking with Larry today... if we had the chance to conceive with my eggs, we'd go for it. This opens up an interesting can of worms for later, but I'll get into that in a separate post.

2:02pm - Taking a break from the sessions to check out the exhibitors. Lots of candy to give away, as well as neat swag (props to Harvard Vanguard for the pillbox keychain!) and of course, tons of great information. Also great to see Joanne from Circle+Bloom. And I had a wonderful conversation with Davina - apparently she LOVES her doc... who just happens to be the person I'm seeing next week for my second opinion. Very comforting to talk with her about her experience, as I'm nervous about the possibilities.

1:07pm - So... I just got a Volunteer Award. Um, seriously not expecting this and TOTALLY flattered and humbled. Thanks RNE ladies! Y'all rock! (And props to Lee Collins, Terri Davidson, Amy Demma, and Sandy O'Keefe for their Volunteer Awards as well!)

12:57pm - RNE Board Member and Advocacy Director Davina Fankhauser is giving out RNE's Advocacy Awards to our corporate sponsors who helped to get the Infertility Mandate updated in MA. Recipients (in alpha order): BostonIVF, Brigham & Women's, Mass General Hospital, Reproductive Science Center (and specifically Dr. Samuel Peng), and Village Pharmacy. Davina has also announced a celebration of Family Building legislation at the MA State House on Wednesday, Dec. 15th from 2-3pm.

12:15pm - Really informative session. Learned a lot about the legality and the ways in which embryo donation programs vary throughout the country. Now, time for lunch! My tummy is a rumblin'.

11:58am - Susan: Virtually all states have statutes regarding sperm donation: children created through donor sperm are the children of the recipient couple. 9 states have statutes expanding this to include both egg and embryo donation. Sadly, MA is not one of these states. Only GA and FL have laws with specific terminology regarding embryo adoption. She recommends a "belt and suspenders" approach just to make sure that your family is protected by the law, and that means approaching a judge in those 41 other states and going through the procedure to adopt your own child. An almost absurd approach, but it's the safest and broadest protection to the legality of your family and ultimately, it's a bunch of paperwork more than it is from the traditional adoption approach.

11:49am - Amy: While it's legally complex, the legality should not be a deterrent if embryo donation is the right path to family building for you. Susan: Even with known donors, get a contract. Sometimes this can even be a screening tool if someone you know isn't willing to do a contract, this might send out a red flag for the eventual legality of your future family.

11:45am - Susan: Many couples who do IVF are willing to check off the "donate my leftover embryos" prior to achieving parenthood but often change their mind after the fact when they realize that there is the potential for their children to have genetically-related siblings out there in the world. A great discussion going on about consent.

11:40am - An overview of the process: 1) Find embryos. 2) Get them screened (look up IVF records, have donors and recipients screened). 3) Homestudy - are you suitable recipients per the standards of the donation agency? And those standards vary greatly across the map. 4) Medical protocol for the transfer itself. From a mental health professional in the audience: how much does the recipient family get to know about the donor? It varies from program to program. All of the donations that Amy has been a part of have been known. The point is raised that the mental health issues that face adoptive parents are nearly the same for embryo donation recipients.

11:33am - To the African-American woman earlier: don't be discouraged as there ARE options- there are donors and embryos to be found, but just requires some digging. Amy has some great resources to refer to her.

11:28am - Just learned about PGD (Pre-implantation genetic diagnosis). Mind. BLOWN. You can take 1 cell from an 8-cell embryo and run it through hundreds of genetic tests and then you can STILL grow a healthy embryo from the remaining 7 cells. WHUT.

11:25am - Interesting screening issue: donor couple needs to be screened, but if the embryo was conceived using donor gametes, then those donors need to be screened. This of course, varies by clinic, but an important point to consider.

11:21am - "The first place you should start looking for embryo donation programs is with your own clinic." - Amy Demma. The list she started with just two years ago has grown extensively. A large portion of programs have been faith-based, but they have been expanding, as Amy's noted in a really fantastic handout packet.

11:13am - Important distinction: embryo donation is the proper term as legally, embryo "adoption" means that you don't have legal ownership of the child you've carried for 9 months until 4 days after its born (in MA, at least). A small distinction, but a legally important one. Terminology, as I've been learning in our IF journey, is vitally important. Other key definition: embryo donation is a frozen egg that has been fertilized. From a personal perspective, it's where adoption and donor egg/sperm meet. Neat.

11:07am - Survey of the room: some MA couples, 2 folks from NY, and 1 couple from NH. Important to know since laws vary from state to state. Speakers are lawyers Susan Cocklin and Amy Demma, both area lawyers specializing in infertility law.

10:57am - Waiting for the Embryo Donation session to start. Looking forward to getting some more information about a subject about which I don't really have much knowledge. Interesting side-conversation overhead: an African-American woman expresses concerns that her clinic does have embryo donation, but no African-American embryos. A point I would have never considered; even though I'm half-Japanese, I have the luxury of being able to "pass" as "white." That's why ladies like Broken Brown Egg are a vital voice in this community: the African-American perspective on infertility is often forgotten about. Whoa, got off topic here. More updates soon with the latest info re: embryo donation.


10:34am - See! I met Melissa. Here's photographic evidence :) Also, what a great conversation - everything from blogging and book writing to "the ribbon cross lady on the plane." Oh, I do hope she blogs about her b/c that was a hysterical story. Time to head off to the volunteer table - first volunteer assignment of the day coming up: being room monitor for the Embryo Donation session.

10:04am - Chatting with Melissa Ford. She is one cool lady! Discussing the virtues of self-hosting my blog.

9:07am - My husband just called me the "Infertility Engadget" with this liveblog. I'm touched and flattered. Also, the conference Twitter hashtag is #RNE10.

9:04am - Q: Is there a clearinghouse of correct information? A: Go with your gut. Case in point? The multiple times Melissa has received advice to rub yam cream on herself. Yam cream?! Wow. She also addresses the Robutussin lore: may not be scientifically backed up, but we hear about it everywhere. Ultimately? Take it back to your doctor.

8:59am - Exciting! We're opening up for question & answers. Q: Are their blogs for men? Sure ARE! (Looking for them? You can check out some of them here under "The Elusive Male Point of View."). Oh, PS? We need more male voices out there.

Q: "Can you blog anonymously?" A: Absolutely - and if you do choose to reveal your identity, great advice - don't name your doctor, don't name your clinic. (Note to self: I'm going to go back and delete some stuff.) Referencing the Justin Long fiasco. You can also "come out" on your own terms, and when you're ready.

8:54am - "Go online and find your virtual tribe." Great point about the ways in which we seek support. "Go home and start a blog." Wow, so true - that's exactly how I got started, and I know so many of you did too! Shoutout for the ALI Blogroll. "And while support won't cure infertility, it will give you refuge."

8:53am - "The only way out of infertility is through infertility."

8:52am - Best advice for life, received from her dear friend Carla when Melissa forgot the notes to her first book reading: "Just wing it." Life doesn't always go according to plan, and that pausing from life isn't an option. Don't stop living - we can't let infertility take away from living our lives. "Just wing it" is the anti-"just relax."

8:48am - "When the losses are that small that they can be hidden, what right do I have to mourn deeply?" Melissa reflects about the loss of Politics and Prose owner, Carla Cohen and ties it back to the journey of infertility. How do you share a silent experience with others?

8:45am - "Infertility: the news never comes at a good time." Um, truth sister. Sing it, Melissa!

8:41am - Lots of conference raffles... exciting! Also, here comes keynote speaker, Melissa Ford!

8:32am - Been here for a few minutes now, finally connected to the hotel WiFi AND I just met the Stirrup Queen herself, Melissa Ford! Exciting. Also, as far as I've heard - we're officially over the number of pre-registered attendees from last year... final numbers at the end of the day once we figure in walk-in attendees. Considering purchasing a 2nd copy of her book for her to sign since we still haven't unpacked our (21) boxes of books yet. Oops. Ahah, here come Rebecca Lubens, Executive Director of RESOLVE of New England and Melissa Ford... and here we go!

6:46am - And we're off! On the road to the Conference. Hope to arrive just past 8am.